What is something unique and special about your child with trisomy that you wish more people knew?
Emma is a sassy 11 year old with the best personality. She’s always in a good mood. She loves school and being around other people.
Why do you believe raising awareness about trisomy conditions is important, and how can others make a difference?
Awareness that these children can survive and thrive with basic intervention is very important. If it had been up to the majority of doctors that came in contact with Emma from when I was pregnant with her up until her first birthday she would not be alive. They wanted to deny basic care for her just based on the diagnosis.
During Trisomy Awareness Month, what message would you like to share with the world about your family’s journey and the trisomy community?
Emma is the light of our lives. Everything is centered around her. She goes everywhere with us We take her to church and restaurants, go shopping, go to the movies, we go on family vacations around the US every year. We live very full lives with her and she is included in everything.
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