BLOGS
SOFT Member Spotlight – Angela Salazar-Beaugez
More Than a Diagnosis: Angela Salazar-Beaugez and Bella’s Journey with Trisomy 18Introduction When parents receive a trisomy diagnosis, the world often feels like it’s falling apart. For Angela Salazar-Beaugez, learning that her daughter Bella had Full Trisomy 18 was...
SOFT Member Spotlight – Gina Csontos
From Fear to Family: Gina Csontos and Mark's Trisomy 13 JourneyIntroduction Receiving a diagnosis of a chromosomal condition can turn a parent's world upside down. For Gina Csontos, the news that her son Mark had Partial Trisomy 13 was not just a medical revelation—it...
SOFT Member Spotlight – Susanne Josiah
Embracing the Unexpected: Susanne Josiah and Josiah Bishop’s Trisomy Journey Introduction Life often presents unexpected challenges, and for Susanne Josiah, learning that her son, Josiah Bishop, had Mosaic Trisomy 18 was one such moment. The diagnosis came with fear,...
SOFT Member Spotlight – Cathy Shelander
A Journey of Love and Adoption: Cathy Shelander and Annabel’s Story Introduction Parenting is a journey filled with unexpected turns, but for Cathy Shelander, the path was even more unique. Unlike many trisomy parents who first receive a diagnosis during pregnancy,...
SOFT Member Spotlight – Melinda Snellbaker
A Journey of Love and Advocacy: The Story of Melinda Snellbaker and Waylon Introduction For many parents, receiving an unexpected diagnosis for their child is a life-changing moment filled with uncertainty, fear, and questions. Melinda Snellbaker knows this feeling...
Trisomy Awareness Month Spotlight – Theresa Conaway
What is something unique and special about your child with trisomy that you wish more people knew? Emma is a sassy 11 year old with the best personality. She's always in a good mood. She loves school and being around other people. Why do you believe raising awareness...
Trisomy Awareness Month Spotlight – Nidelsa Caminero
What is something unique and special about your child with trisomy that you wish more people knew? He's Friendly and lovely child. He enjoys that his siblings read books for him. But the most especially is your eye contact when he needs some help. He’s so smart. Why...
Trisomy Awareness Month Spotlight – Katrina Cruzado
What is something unique and special about your child with trisomy that you wish more people knew? He has esophageal atresia. Despite having small physical size, he was a fighter. Why do you believe raising awareness about trisomy conditions is important, and how can...
Trisomy Awareness Month Spotlight – Luz Amalia Veloz Gonzalez
What is something unique and special about your child with trisomy that you wish more people knew? our children are compatible with life, their life has a lot of value and deserves to be respected and treated with dignity, they are our teachers of life. Why do you...
Trisomy Awareness Month Spotlight – Cindy Sampson
What is something unique and special about your child with trisomy that you wish more people knew? Her eyes and smile lit up the world and she was happy with life. She was also very sassy and loved riding fast rides at the fair. Why do you believe raising awareness...