BLOGS
Congenital Heart Surgery in Trisomy 13 and 18
From the SOFT 2021 Virtual Conference Professional Panel Congenital Heart Surgery in Trisomy 13 and 18 - An Update and Future Directionswith Dr. Katherine Kosiv, Assistant Professor of Clinical Pediatrics, Yale School of Medicine
Interdisciplinary Care of Children with Trisomy 13 and 18
From the SOFT 2021 Virtual Conference Professionals Panel. Interdisciplinary Care of Children with Trisomy 13 and 18with Dr. Nicole Birge, MD, Medical Director of the Neonatal Intensive Care Unit at Children’s Omaha and Dr. Lois Starr, MD, PhD.
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T13 Families
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Parent-reported histories of adults with trisomy 13 syndrome
Click here to view and download a .pdf copy of this article.
2021 SOFT Run Walk or Roll
SOFT is excited to announce our first virtual Run Walk Roll! Do you want to help spread trisomy awareness? Do you like winning prizes? Do you want to help support an organization that brings you great events like the virtual conference? Get your team together and let...
2021 SOFT Virtual Conference is July 19 – 25!
The 2021 SOFT Virtual Conference planning is in the final stages and we are very excited to share this event with you. The team has been working hard to make sure our virtual event feels as much like home as our in-person events do. Because of the virtual format, we...
Covid-19 Vaccination Update for Children with Trisomy
The authorization by the Food & Drug Administration of the Pfizer vaccine for children ages 12 to 16 years and the strong recommendation by the Centers for Disease Control & Prevention (CDC) to administer the vaccine are major landmarks in the history of...
2021 Kari Holladay “SOFT Friends” Video Submission
Submission for the 2021 SOFT Friends Video is now closed. ------------------ ALL CALL for pictures for the SOFT Friends Video We invite you to be a part of the annual Kari Holladay "SOFT Friends" Video montage, a special presentation honoring all our children through...
Krissy Krotzer – Trisomy 18
"This little girl, who cannot do anything to care for herself, is so filled with love that no matter how much she needs; she still gives far more than she takes. She is a beacon of light. She has taught us to believe in possibilities. She has taught us what it truly...