BLOGS
Trisomy Awareness Month Spotlight – Rilee Vanlom
What is something unique and special about your child with trisomy that you wish more people knew? Bella has a smile that could melt anyone’s heart. She’s full of sass and knows exactly how to push the limits—doing something she shouldn’t, then flashing the biggest...
Trisomy Awareness Month Spotlight – Kari Adamson
What is something unique and special about your child with trisomy that you wish more people knew? Leila is truly a gift from God and such a blessing to us. She has overcome so many obstacles in her life. I wish more people understood how strong and resilient our kids...
Trisomy Awareness Month Spotlight – Ruth de la Cruz
What is something unique and special about your child with trisomy that you wish more people knew? She is a happy and affectionate girl, she is in 3rd grade and enjoys being with other children, she receives appropriate special education services, Chantal is the joy...
2024 Trisomy 18 Medical Panel – Expert Insights During Trisomy Awareness Month
As part of Trisomy Awareness Month 2024, SOFT (Support Organization for Trisomy) proudly hosted a medical panel dedicated to Trisomy 18 (Edwards syndrome). This recorded session features leading medical professionals who share the latest insights on diagnosis,...
Trisomy 13 Medical Panel – Trisomy Awareness Month 2024
In recognition of Trisomy Awareness Month 2024, SOFT (Support Organization for Trisomy) was honored to host a special panel discussion focused on Trisomy 13. This expert-led session brought together leading medical professionals to share current insights, research...
SOFT Member Spotlight – Nika Pride
Embracing the Unexpected: Nika Pride’s Journey with NovaIntroduction For many parents, the diagnosis of trisomy 18 can be a life-altering moment, filled with uncertainty and fear. For Nika Pride, the unexpected news came after the birth of her daughter, Nova. In this...
SOFT Member Spotlight – Laura Horvath
Blossoming Through Adversity: Laura Horvath’s Trisomy 18 JourneyIntroduction In the world of rare genetic disorders, few conditions present as many challenges as trisomy 18. For Laura Horvath, a mother whose life took an unexpected turn upon learning of her daughter...
SOFT Member Spotlight – Starla Reese
A Journey of Strength and Devotion: Starla Reese and Hayli’s Trisomy 13 Mosaic StoryIntroduction Navigating life after a rare genetic diagnosis can feel like stepping into the unknown. For Starla Reese, the discovery that her daughter Hayli had Trisomy 13 Mosaic came...
SOFT Member Spotlight – Meredith Willard
One Day at a Time: Meredith Willard’s Journey with Rose and Trisomy 18Introduction When a parent first hears the words “Trisomy 18,” their world can suddenly feel unfamiliar and overwhelming. For Meredith Willard, learning that her daughter Rose had Full Trisomy 18...
SOFT Member Spotlight – Barb VanHerreweghe
A Lifetime of Advocacy and Love: Barb VanHerreweghe and Stacy’s Trisomy 18 JourneyIntroduction When Barb VanHerreweghe learned that her daughter, Stacy Lynn VanHerreweghe, had Full Trisomy 18, she was thrust into a world she had never heard of before. With no internet...