Care Book
Care of the Infant and Child with Trisomy 18 or Trisomy 13 was written for parents who are expecting, living with or remembering a child affected with these disorders. The greater portion of text covers problems and management of care of the live born infant and living child. It has been continually updated as new information has become available and is the only known resource of its kind. The updated book is available here in English (click the cover), Spanish and Portuguese (click the links below). Please feel free to reproduce as many copies as desired (but don’t change any of the text).
Related
A Trisomy 18 Journey of Courage, Care, and Joy: The Story of Dane Sogge
When families first hear the diagnosis Trisomy 18, also known as Edwards syndrome, they often face...
How SOFT Created the Trisomy 18 & Trisomy 13 Expectant Parent Books: A Deep Dive on the SOFT Podcast
How the Trisomy 18 and Trisomy 13 New and Expectant Parent Books Came to Life Families who receive...
AAP Report on Trisomy 18 and 13: How New Guidance Is Changing Care for Families and Clinicians
A Historic Shift in Trisomy Care The AAP Report on Trisomy 18 and 13 represents one of the most...


































