SOFT has held annual family and medical conferences in various cities since 1987. The annual conference is organized by a host chapter and conference topics have included an overview of Trisomy 18 and Trisomy 13, medical issues affecting children with trisomy, medical clinics, support services available, information on making medical decisions for children with trisomy, and much more. Typically, about 85 families attend and about 40 SOFT children with Trisomy conditions. Look under “Events” on the website menu to read the latest conference brochure, for an overview of a typical conference. Attendance numbers for the last several conferences are below the photos on this page.
Past Conferences & the Hospitals Hosting the Medical Clinics:
2019
Ann Arbor, Michigan
University of Michigan’s C.S. Mott Children’s Hospital
Attendance: TBC
2018
Omaha, Nebraska
University of Nebraska
Attendance: TBC
2017
Madison, Wisconsin
University of Wisconsin
Attendance: 285 (202 Adults, 42 Children, 41 SOFT Children)
2016
Tacoma, Washington
Mary Bridge Children’s Hospital
Attendance: 284 (199 Adults, 47 Children, 38 SOFT Children)
2015
Salt Lake City, Utah
Primary Children’s Hospital
Attendance: 269 (198 Adults, 30 Children, 41 SOFT Children)
2014
Norfolk, Virginia
Children’s Hospital of the King’s Daughters
Attendance: 320 (217 Adults, 59 Children, 43 SOFT Children)
2013
Providence, Rhode Island
Hasbro Children’s Hospital
Attendance: 245 (171 Adults, 44 Children, 30 SOFT Children)
2012
St Louis, Missouri | Cardinal Glennon Children’s Hospital
Attendance: N/A
2011
Chicago, Illinois – Hope Children’s Hospital, Oak Lawn
Attendance: 329 (214 Adults, 60 Children, 55 SOFT Children)
2010
Sioux Falls, South Dakota
Sanford Children’s Hospital
2009
Roanoke, Virginia
Carillion Roanoke Community Hospital
2008
Denver, Colorado
The Children’s Hospital, Aurora, Colorado
2007
Salt Lake City, Utah
Primary Children’s Hospital
2006
Chicago, Illinois
Hope Children’s Hospital
2005
Rochester, New York
Strong / Golisano Children’s Hospital
2004
San Antonio, Texas
Co-conference w/Chromosome 18 Registry
2003
Salt Lake City, Utah
Primary Children’s Medical Center
2002
Chicago, Illinois
Hope Children’s Hospital
2001
Boston, Massachusetts
Feingold Center for Children, Waltham, Massachusetts
2000
Orlando, Florida
Arnold Palmer Women & Children’s Hospital
1999
Rochester, New York
University of Rochester/Strong Memorial Hospital
1998
Pittsburgh, Pennsylvania
Allegheny General Hospital
1997
Salt Lake City, Utah
Primary Children’s Medical Center
1996
Durham, North Carolina
Lenox Baker Children’s Hospital
1995
Seattle, Washington
University of Washington Children’s Hospital
1994
Toronto, Canada
Hospital for Sick Children
1993
Chicago, Illinois
Loyola University Medical Center, Maywood, Illinois
1992
Baltimore, Maryland
Kennedy Krieger Institute, Baltimore
1991
Seattle, Washington
University of Washington Children’s Hospital
1990
St Louis, Missouri
St. John’s Mercy Children’s Hospital, St Louis, Missouri
1989
San Francisco, California
University of California, San Francisco Medical Center, California
1988
Philadelphia, Pennsylvania
Albert Einstein Medical Center, Philadelphia, Pennsylvania
1987
Salt Lake City, Utah
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