More Than a Diagnosis: Angela Salazar-Beaugez and Bella’s Journey with Trisomy 18

Introduction

When parents receive a trisomy diagnosis, the world often feels like it’s falling apart. For Angela Salazar-Beaugez, learning that her daughter Bella had Full Trisomy 18 was one of the most emotional moments of her life. The fear, sadness, and uncertainty were overwhelming—but what followed was a story of strength, advocacy, and realizing that a diagnosis is not a definition. Angela’s journey with Bella is a powerful testament to the beauty of love and the strength of the human spirit.

The Diagnosis: Fear and Sadness

“I was so scared and so sad. I was afraid that she would suffer.” Those were Angela’s first thoughts when she learned of Bella’s diagnosis. Like many parents facing a trisomy condition, the fear of the unknown was intense. She worried about Bella’s quality of life, her health, and whether they would even have the chance to make memories together.

“I was afraid that I wouldn’t be able to take care of her physically and emotionally… I didn’t know if I had what it took to be a parent of a child with special needs.”

Bella’s Birth: Bravery and Expectation

Angela had a planned C-section and knew to expect complications. Though the day was filled with tension and anticipation, it was also one of incredible bravery. Seeing Bella for the first time was emotional—not only because of her fragility, but because of the powerful bond that instantly formed. Bella was here, she was loved, and she was already rewriting expectations.

“I had a planned c section and knew to expect complications. She did not cry right away. Laying on the table, unable to move, just waiting for them to work on her to help her breath was so scary. But I finally heard her cry and was so blessed. They showed her to me and whisked her away to the NICU.”

Evolving Through the Trisomy Journey

Over time, Angela’s perspective on Trisomy 18 changed drastically. “She is so much more than the high risk on a doctor’s notes,” Angela said. With each passing day, Bella revealed her strength, resilience, and individuality. She was not just a medical case—she was a daughter, a fighter, and a source of profound joy.

The journey hasn’t been easy. There have been difficult decisions, moments of doubt, and emotional exhaustion. But the rewards—Bella’s presence, her milestones, and the love she brings—have made every step meaningful.

“She is the light of our lives, and not just mom and fmla d but aunts and uncles and grandparents. They had indicated that she would never walk, talk, or move on her own. And while that is semi true, she is so much more. She is NOT a vegetable devoid of connection or emotion. She laughs, smiles, reaches out for hugs and to be picked up. She is so calm and easy going that it shames me when I think to complain about anything when I see what see must deal with. She has her own distinct personality that I wouldn’t wish to change for the world.”

A Memorable Encounter: Hospice with Heart

One of the most pivotal moments in Angela’s journey came early on. “My first encounter with the hospice neonatologist who told me she was a baby and not a diagnosis.” That moment shifted everything. It validated Angela’s feelings and gave her permission to see Bella not through the lens of medical limitations, but as a child worthy of life, dignity, and love.

“We spoke with her after diagnosis but before delivery. Her therapy teams for PT /OT have been instrumental in helping Bella progress. It’s slow going with huge reward and they have not given up on her. All her speciality drs support her.”

That compassionate reminder has stayed with her, helping shape how she parents Bella and how she advocates for other trisomy families.

Advice for New Trisomy Parents

Angela wants new parents to know: “It’s not an immediate death sentence. Your child has value. They matter.” She emphasizes that every child’s journey is different, and no prediction can truly capture the potential within each moment. “There are hard times but precious joyous times as well. I would like them to know that it’s ok to question drs and to get second opinions.”

She encourages others to stay present, ask questions, and find support. The path may be difficult, but it is also full of unexpected beauty. The love, the connections, and the strength that grows in the face of adversity can be life-changing.

Conclusion

Angela Salazar-Beaugez’s story with her daughter Bella is a moving example of how love can break through fear, and how one child can change the narrative around a diagnosis. Through her experiences, Angela reminds us that trisomy doesn’t define a child—their spirit, their life, and the love they share with those around them does. And in Bella, the world has found a story worth telling, one filled with courage, hope, and undeniable joy.