SOFT Conference 2022 Covid-19 Precautions

By Kelly Hernandez | April 30, 2022

Questions and concerns about COVID-19 are regularly posed to health care professionals regarding the care for persons with trisomy 13, trisomy 18, and related trisomy syndromes. These issues were particularly relevant in the recent decision of the SOFT Board of Directors to host the hybrid 2022 Conference this July 13-17 in Roanoke Virginia. The SOFT…

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Covid-19 Vaccination Update for Children with Trisomy

By SOFT | May 21, 2021

The authorization by the Food & Drug Administration of the Pfizer vaccine for children ages 12 to 16 years and the strong recommendation by the Centers for Disease Control & Prevention (CDC)  to administer the vaccine are major landmarks in the history of slowing the COVID-19 pandemic.  These important events likely raise the issue for…

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Medical Providers May Not Deny Medical Care Based on Disabilities

By Terre Krotzer | March 28, 2020

The New York Times reports: “Federal civil rights office rejects rationing medical care based on disability or age.” The U.S. Department of Health and Human Services’ civil rights office told medical providers on Saturday that they may not deny medical care to people on the basis of their disabilities or age during the coronavirus emergency.…

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Important Update Regarding 2020 SOFT Conference

By Terre Krotzer | March 20, 2020

To Our SOFT Family: SOFT is an organization that has always and will always put families first. In light of the arrival of COVID-19 in the United States, the Board of Directors convened to discuss appropriate actions that should be taken in order to keep our members, and most importantly our SOFT children, safe. We…

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