Skip to content
FacebookYoutubeInstagram
  • Your Membership Status & Number
  • en
    • da
    • en
    • fr
    • it
    • pt
    • ro
    • es
SOFT - Support Organization For Trisomy
  • New Here?
  • About Us
    • History
    • Leadership
    • SOFT Brochures
  • Publications
    • Publications (English, Spanish, Portuguese), and Reports
    • The Care Book
    • About Trisomy
    • Trisomy 18
    • Trisomy 13
    • Related Disorders
    • Expecting a Child
    • Parenting a Child
    • Remembering a Child
  • Medical Professionals
    • SOFT Welcomes Medical Professionals
    • Professional Literature
    • Surgeries
      • Cardiac Surgeries or Procedures Performed
      • Hospitals – Where Cardiac Surgery Accomplished
      • Non-Cardiac Surgeries or Procedures
      • See All
  • Resources
    • Trisomy 18
    • Trisomy 13
    • The Medical Care Book
    • Surgery Lists & Growth Charts
      • Surgeries & Growth Charts
      • Hospitals – Where Cardiac Surgery Accomplished
      • Non-Cardiac Surgeries or Procedures
    • Parenting a Child
    • Expecting a Child
    • Beyond Goodbye
    • SOFT’s YouTube Video Channel
    • International Support Groups
  • Blog
    • Family Stories
    • News
  • Events
    • SOFT Virtual Conference
      • SOFT Virtual Conference – 2021
      • SOFT Virtual Conference – 2020
    • SOFT Conference
    • Trisomy Awareness Month
  • Membership
    • Register or Update Membership
    • Report a Child’s Passing
    • What’s My Membership Status?
    • Membership Analysis
    • Report a Surgery
    • Submit Your Family Story
    • Privacy Policy
  • Contact
    • State/Province Contacts
    • Contact SOFT
  • Donate
  • Admin

Posts Tagged ‘Recommendations’

Health Supervision & Anticipatory Guidance for Infants & Children with Trisomy 18 & 13

By Jack and Dianna Aubele | January 1, 2005

The Table below is extracted from the SOFT Trisomy in Review Research Newsletter, first published in 1993 and updated in 2005. It is meant to provide a framework and checklist for medical care, follow up, and screening of infants and children with trisomy 18 and 13. Note in reviewing the Table that precise figures for most…

Read More

Recent Posts

  • Alejandro S – Trisomy 18
  • Madilyn F – Trisomy 18
  • Trisomy Awareness Month Medical Panels
  • Trisomy Awareness Month Proclamations 2023
  • 2023 SOFT Trisomy Awareness Month Spotlight

Select a Video Category to see available videos

About

  • About SOFT
  • About Trisomy
  • Trisomy 13
  • Trisomy 18
  • SOFT’s Privacy Policy
  • Terms & Conditions

More Information

  • Blog
  • Publications
  • Stories
  • Medical Professionals
  • Membership
  • Report a Surgery
  • Resources

Connect with Us

  • Contact

Follow Us

  • Facebook
  • YouTube
  • Instagram
  • Twitter

2982 South Union St.,
Rochester, NY 14624

Trisomy 18, Trisomy 13 and Related Disorders. © 2022 SOFT. No cookies are created by this site. Privacy Policy | Terms and Conditions of Use

Full ADULT (ages 12+) Conference Registration (Conference, Workshops, Clinics, Picnic): $149

Full Child (age 5-11) Conference Registration: $119

Children under 5 and SOFT children: FREE

Other Pricing

Adult Picnic-only Registration: $39

Child (ages 5-11) Picnic-only Registration: $25

Adult Picnic & Auction Registration: $49

Child Picnic & Auction Registration: $35

Place Order

Trisomy Awareness Products order form

  • SOFT Trisomy Awareness Month Products

  • Trisomy STRONG Wristbands in Blue, Yellow or Purple and "We are their Voice. They are our heart." Wristbands in Red & Blue combined.

  • image image
  • Please enter a number from 0 to 10.

  • Please enter a number from 0 to 10.

  • Please enter a number from 0 to 10.

  • Includes 3 wristbands, 1 auto window decal & 5 postcards for a $12 donation
  • Please enter a number from 0 to 10.

  • SOFT Trisomy Strong Adjustable Wristlet

  • image
  • Price: $12.00 Quantity

  • SOFT Trisomy Strong Face Masks

  • image
  • Please enter a number from 0 to 10.
    If choosing assorted please enter preference in comments at bottom of form.
  • Please enter a number from 0 to 10.

    If choosing assorted please enter preference in comments at bottom of form.

  • SOFT Trisomy Awareness Postcards

  • image
  • Please enter a number from 0 to 10.
  • Please enter a number from 0 to 10.
  • Please enter a number from 0 to 10.

  • SOFT Awareness Ribbon Auto Window Decals

  • image
  • Please enter a number from 0 to 10.

  • Shipping

  • Shipping to US addresses is included in the above prices. If shipping to an address in Canada there is a shipping charge of $15. For shipping to all other countries there is a shipping charge of $15. Enter quantity of 1 in the box below to have shipping charge added to your order. If shipping charges on your order are significantly higher than the $15 charge we will contact you.

  • Please enter a number from 0 to 1.
  • Please enter a number from 0 to 1.

  • $0.00

  • After tapping the SUBMIT button, you will be taken to PayPal to complete the transaction, paying with either your credit card or your PayPal account. After tapping the SUBMIT button, please allow some time for the transfer to PayPal to occur.

  • Give us some information to help us find and verify your account.
  • where can we reach you with your information?

  • Give us some information to help us find and verify your account.
  • where can we reach you with your information?

Spread the Word

We’ve got some ideas on how you can raise awareness

Visit our TAM page

Share SOFT Stories on Facebook

Speak to Your Friends, Family, and Doctors

Start a Merchandise Fundraiser

 

Interested in Starting a Fundraiser?

Here are some ideas how

Use FaceBook to start a Fundraiser on Your Birthday

Sell Merchandise though a Fundraising Platform

    • Bonfire
    • Teespring

Use Another Fundraising Platform

    • Indiegogo
    • FirstGiving

Participate in an Event like a Walk or Run along with Crowdrise