Posts Tagged ‘Trisomy 18’
Alejandro S – Trisomy 18
My baby is 8 month old. He’s a really happy boy. When he born they told us he wasn’t going to make it. They didn’t want to do his heart surgery so we started to look for a different hospital. We got the best doctor, Dr. Charles Huddles at Cardinal Glennon in St. Louis, MO.…
Read More
Madilyn F – Trisomy 18
“We spent many wonderful hours just enjoying our sweet little girl. There are many things I wish could have been different but I will always treasure the time I had with Madilyn.” At our 20 week ultrasound we learned we were having a girl! We were so excited. My husband left to buy pink donuts…
Read More
Trisomy Awareness Month Medical Panels
Have a question related to Trisomy 13 (Patau Syndrome) or Trisomy 18 (Edwards Syndrome) ? If so, you are in luck! During March, SOFT will hold two medical panels; one that focuses on Trisomy 13 and one with Trisomy 18 as the focus. We know a big draw at our conference is getting to speak…
Read More
Trisomy Awareness Month Proclamations 2023
2023 Trisomy Awareness Month Begins March 1st! The 2023 Trisomy Awareness Month proclamations are beginning to roll in. All proclamations received so far this year are featured below. Although March been declared and recognized as Trisomy Awareness Month for over a decade it has taken some time to get the month officially recognized by individual…
Read More
2023 Trisomy Awareness Profile Frames & Covers
Help Spread Trisomy Awareness with a Trisomy Awareness Profile Frame and Cover Image. To help our community speak with ONE VOICE to raise Trisomy Awareness SOFT has created Trisomy Awareness Profile Frames and Cover Images for you to use on your Facebook page and across all of your social media accounts. Below are this year’s…
Read More
Video – 2022 SOFT Medical Advisory Board Round Table
First ever SOFT Medical Advisory Board Round Table Recorded March 18, 2022 Featuring: Dr. John C. Carey Dr. Glenn Green Dr. James Hammel Dr. Shaji Menon Dr. Scott Showalter This video is the replay of the first SOFT Medical Advisory Board Round Table hosted by Dr. John C. Carey. This Q & A style roundtable…
Read More
Trisomy Awareness Month Proclamations 2022
2022 Trisomy Awareness Month Begins March 1st! As of March 10, 2022, SOFT has received 2022 Trisomy Awareness Month Proclamations from 17 states. Although March has been declared and recognized as Trisomy Awareness Month for over 10 years it has taken some time to get the month officially recognized by individual states. Our numbers are…
Read More
2022 Trisomy Awareness Profile Frames & Covers
Help Spread Trisomy Awareness with a Trisomy Awareness Profile Frame and Cover Image. To help you raise Trisomy Awareness SOFT has created Trisomy Awareness Profile Frames and Cover Images for you to use on your Facebook page and across all of your social media accounts. Facebook is limiting the number of organizations and companies that…
Read More
Trisomy Awareness Month Panel with Members of the SOFT Medical Advisory Board
Did you know that SOFT has a Medical Board? March is Trisomy Awareness Month and we have some special events planned for our members! Did you know that SOFT has a Medical Board? On March 18th we will be bringing together a few of our Medical Board members to answer your questions. We know a…
Read More
2022 Trisomy Awareness “SOFT” Wear Collection
March is Trisomy Awareness Month We are excited to release the 2022 Trisomy Awareness “SOFT” Wear Collection. Update: The special order of Trisomy Awareness Shirts is closed. You can still order directly from our Trisomy Awareness Store on Spri.ng. This year we are doing something different and having our shirts screen printed. Because of this…
Read More
You must be logged in to post a comment.