What is something unique and special about your child with trisomy that you wish more people knew?

All of us know the exact moment we received the diagnosis. Jameson was to be my Angel baby, and I found out at 12 weeks pregnant that he was “incompatible with life”. What do you do with this?!? My “boyfriend” at the time deserted me after the diagnosis. I was given options and encouraged to abort. I couldn’t. He had a strong heartbeat!! I knew that as long as he was fighting, I would too. I celebrated my baby and every milestone. He was my narwhal. My unicorn. Jameson taught me so much about life, love and compassion.

Why do you believe raising awareness about trisomy conditions is important, and how can others make a difference?

Raising awareness is important to me because the doctors tell you how rare Trisomy is. I was made to feel so alone and fight this label by myself. After Jameson was born still, did I find out how many people in my own community have/had been through the same thing! Women are still being told their babies are incompatible with life, when this is no longer accurate. I want to spread awareness in my community, but especially with the doctors.

During Trisomy Awareness Month, what message would you like to share with the world about your family’s journey and the trisomy community?

It takes a village. There is no way or reason to go through this alone. Whether your baby is terminated, born still, lives for a few minutes/hours/days, or even years. YOU ARE NOT ALONE.