University of California San Diego (UCSD) Pediatrics Study Opportunity

WHAT: Investigators at UCSD are interested in learning more about parents views and experiences of the medical care provided to their children with trisomy 18 or 13. Specifically, we are interested in hearing about your experiences with making medical decisions for your child. We would like to hear your story in the hopes of guiding and improving future care for families like yours.

This study will be conducted via virtual Zoom interviews for your convenience!

WHO: Interested parents of children with Trisomy 18/13 whose child was born within the last 5 years. We welcome parents of children who are no longer with us to participate and share their stories.

HOW: For more information, please contact Ryan Sanchez, MD at: rysanchez@health.ucsd.edu