A Mother’s Journey of Hope and Resilience: Luz Amalia Veloz Gonzalez and Mia Ariely Juárez Velo

Introduction

Luz Amalia Veloz Gonzalez’s world was turned upside down when she received the news that her daughter, Mia Ariely Juárez Veloz, had been diagnosed with full trisomy 18. The medical professionals painted a grim picture, using phrases like “incompatible with life” and suggesting palliative care. Despite the initial shock and despair, Luz’s journey as a trisomy parent has been marked by hope, resilience, and a growing understanding of the condition.

A Life-Changing Diagnosis

The initial shock of Mia’s diagnosis was like a bucket of cold water for Luz and her family. They were bombarded with negative information and a sense of hopelessness from the medical community. However, their experience at birth was even more jarring. Unaware of Mia’s condition during pregnancy, they were only informed after her birth that she had a severe heart condition and was not expected to survive the day. The news was devastating, and they waited with bated breath for updates on their daughter’s health.

Over time, Luz’s perspective on the trisomy journey evolved. She learned that each child, despite having the same condition, has unique needs and complications. She realized the importance of being informed to advocate for her child’s right to a dignified life and quality healthcare. Connecting with other families in similar situations proved invaluable, as they often had more information than the medical professionals themselves. Facebook pages, local foundations, and support groups provided additional resources and a sense of community.

Luz emphasizes the importance of finding a medical team that is knowledgeable about trisomy 18 and can provide quality care. She encourages parents to lean on other parents for support, stay informed, and never lose faith. Most importantly, she reminds them to cherish every moment with their child, showering them with love, care, and creating beautiful memories.

Words of Encouragement for Other Parents

“I would tell her that each child has his own needs and complications, that she should look for a medical team that is in the best position to give her child quality medical care, that is well informed about her child’s condition so that she can understand and care for her child, that she should rely on other parents and some pages and above all, not lose faith, that they are not alone and that there is hope for life… And something also important is that she should enjoy her little one every day, that she should love him, take care of him, protect him and take lots of photos. That fear exists but it is nicer to give them a beautiful life and that they feel loved.”

Conclusion

Luz’s journey as a trisomy parent is a testament to the power of hope, resilience, and the unbreakable bond between a mother and her child. Her story serves as an inspiration to other parents facing similar challenges, reminding them that they are not alone and that there is always hope for life, love, and precious moments.