What is something unique and special about your child with trisomy that you wish more people knew?

Presley was our Super girl. She was the bravest most amazing little girl. She went through so much in such a short time. 83 days in the hospital Presley went through open heart surgery, had a tracheostomy and G button placed. She fought through so many obstacles and still had a smile on her face.

Why do you believe raising awareness about trisomy conditions is important, and how can others make a difference?

Medical options advance over time. So many kids have shown that with a little help they can live great lives where they can learn and grow with their families.

During Trisomy Awareness Month, what message would you like to share with the world about your family’s journey and the trisomy community?

It was a scary time in our lives as there were so many unknowns. But we’d do it all over again. You have to be their advocates and their voices. Presley fought hard and loved being with her family.