SOFT was represented at the 2018 ACMG (American College of Medical Genetics) Conference
held April 10- 14, 2018 in Charlotte, NC.
Dr John C Carey, Medical Geneticist and Pediatrician, Primary Children’s, SLC, UT – SOFT Medical Advisor
SOFT member exhibitors:
Ann & Frank Barnes, parents of Megan (T18) 1985-2004
Rhonda Yarrington & 3 year old daughter Bella Grace (T18)
Bella was the star of the SOFT booth and a wonderful poster child for trisomy 18!
A first for SOFT at this ACMG meeting was providing handouts in Spanish!!
Materials available for attendees to take from the SOFT booth:
- New fact sheets for each syndrome in English and Spanish, What do we know now? The Spanish translations were of particular interest to many who stopped by the booth.
- Updated SOFT brochures with a QR code
- Business cards with a QR code
- SOFT pens and postcards
For display only at the SOFT booth:
- The Care book in English and also in Spanish
- The SOFT Poetry book
SOFT was well received with geneticists and genetic counselors stopping to talk, share, and learn.