Megan Hayes, oldest known individual in the US (2nd oldest in the world) with Full Trisomy 18 has recently turned 40 years old. A longtime member of SOFT, Megan lives with her parents Ron and Sara Hayes in Oklahoma City, OK.
To commemorate Megan’s milestone her story was featured on two news channels in Oklahoma City:
From News 9:
OKLAHOMA CITY – Ron and Sara Hayes’ daughter spent nearly two weeks in the hospital after she was born.
“When Megan was born, she immediately went to the NICU. I didn’t get to see her at all until the next day. and that was looking through the window,” said Sara.
Tests revealed a crushing diagnosis, a rare genetic disorder.
“Called us back in and said she’s got trisomy 18 and said just take her home she will probably die within 4 months,” recalled Sara.
“Each day you are wondering what’s going to trigger this? What’s going to cause her to die?” said Ron…
From FOX 23:
OKLAHOMA CITY — An Oklahoma City woman just became the likely second-oldest person in the world with her genetic disorder.
Megan Hayes recently celebrated her 40th birthday and she has Trisomy 18, or Edwards syndrome.
Trisomy 18 is a condition caused by an error in cell division, like Trisomy 13 (Patau syndrome) or Trisomy 21 (Downs syndrome).
Trisomy 18 happens when there are three copies of the 18th chromosome in the body’s cells
Expecting mothers over 35 are often screened for Trisomy 13, 18 and 21.