BLOGS
Video – Perspectives on the Care and Management of Children with Trisomy 13 and 18 Syndromes
Intermountain Children's Primary Hospital - Pediatric Grand Rounds John C. Carey, MD, MPH, FAAP, FACMG Emeritus ProfessorUniversity of Utah School of MedicinePediatric Genetics Primary Children’s Hospital Objectives: List the important manifestations and...
SOFT 2021 Candle Lighting Remembrance Ceremony
From the SOFT 2021 Virtual Conference This is the replay of the 2021 Candle Lighting Remembrance Ceremony. Join us as we remember and honor our SOFT Angels.
Finding Words for our Grief
From the SOFT 2021 Virtual Conference Cora Welsh, M.A., CCLSRev. Matt Norvell, DMin., M.S., B.C.C. Pediatric Chaplain
Finding Solutions: Managing Photosensitive Seizures, Light Sensitivity and Ocular Health
From the SOFT 2021 Virtual Conference. Dr. Steven Cantrell, OD - Finding Solutions: Managing Photosensitive Seizures, Light Sensitivity and Ocular Health.
Supplemental Needs Trusts
From the SOFT 2021 Virtual ConferenceSupplemental Needs TrustsDaniel A. Kautz discusses what parents of children and adults with Trisomy conditions need to know about setting up Special Needs Trusts to protect their children financially. Daniel A. Kautz is a...
Lean on Us: An Overview and Review of TRIS Project Activities
From the SOFT 2021 Virtual Conference Lean on Us: An Overview and Review of TRIS Project ActivitiesDeborah A. Bruns PhD The Tracking Rare Incidence Syndromes (TRIS) project seeks to increase the knowledge base on rare incidence trisomy conditions, and to make this...
Face the Sun Art Session
Fron the 2021 SOFT Virtual Conference Face the Sun art session presented by Holly Garce - Art Therapist, MS, ATR Grab the following supplies and create your own Face the Sun art piece: One 1-ounce package of white Model Magic small paper plate small wooden craft stick...
Fitting and Adjusting Mobility Equipment
From the SOFT 2021 Virtual ConferenceFitting, Adjusting and Modifying Mobility Equipment - Strategies for Adults and Children with Trisomies Michael J. Workman PT C/NDT
Aquatic Therapy
From the SOFT 2021 Virtual Conference. Aquatic Therapy - Briana Demars OTA
Spectrum of Epilepsy in Trisomy 18 Syndrome
From the SOFT 2021 Virtual Conference Professionals Panel. Spectrum of Epilepsy in Trisomy 18 SyndromeDr. Agatino Battaglia, MD, DPed, DNeurol