BLOGS
2025 Kari Deann Holladay “SOFT Friends Video” Submission
SOFT Friends Video – Submissions Closed The SOFT Friends Video in honor of Kari Deann Holladay is now closed. The submission deadline was June 1, 2025. Thank you to everyone who contributed. This special tribute to the children and families of SOFT is a meaningful...
2025 Trisomy Awareness Month Event Calendar
Click below to register for our upcoming events. March 1st - 7pm CST: Welcome to Trisomy Awareness Month March 8th - 7pm CST: Family Game Night Register Here to attend on Zoom March 9th - 6pm CST: Trisomy 9 Medical Panel Submit Questions Here! March 13th - 6pm CST:...
2025 Trisomy Awareness Profile Frames & Covers
Help Spread Trisomy Awareness with a Trisomy Awareness Profile Frame and Cover Image. To help our community speak with ONE VOICE to raise Trisomy Awareness SOFT has created Trisomy Awareness Profile Frames and Cover Images for you to use on your Facebook page and...
Trisomy 9 Medical Panel – Trisomy Awareness Month 2025
Trisomy 18 and 13 Medical Panel – Trisomy Awareness Month 2025
SOFT Member Spotlight – Barbara Llanos
A Journey of Love and Strength: Barbara Llanos and Addesa Vasquez’s Trisomy 18 Story Introduction When Barbara Llanos first heard the words Trisomy 18, her world changed forever. The journey of parenting a child with a rare genetic condition is filled with...
SOFT Member Spotlight – Luz Amalia Veloz Gonzalez
A Mother's Journey of Hope and Resilience: Luz Amalia Veloz Gonzalez and Mia Ariely Juárez Velo Introduction Luz Amalia Veloz Gonzalez's world was turned upside down when she received the news that her daughter, Mia Ariely Juárez Veloz, had been diagnosed...
SOFT Member Spotlight – Lilianna Wiebe
A Parent’s Journey: Lilianna Wiebe and Alyosha Nicodemus Introduction The journey of parenthood is often unpredictable, filled with joys, challenges, and moments of profound reflection. For Lilianna Wiebe and her husband, the path took an unexpected turn when they...
SOFT Member Spotlight – Nicole Whitaker
The Strength of a Mother: A Journey Through Trisomy 13 Introduction Receiving an unexpected medical diagnosis for a child is one of the most life-altering experiences a parent can face. The emotions range from fear and uncertainty to unwavering love and...
SOFT Member Spotlight – Brittany Diaz
A Journey of Love and Strength: Brittany Diaz and Everlii Raine Joy Introduction Parenthood is a journey of hope, dreams, and unexpected turns. For Brittany Diaz, this journey took a path she never anticipated when she learned of her daughter’s diagnosis. This is...