BLOGS
Trisomy Awareness Month Spotlight – Billie Johnson
What is something unique and special about your child with trisomy that you wish more people knew? She was far more than a Dx. She brought light, laughter and most important love to any room she entered. She defied odds and was the strongest person I've ever known....
Trisomy Awareness Month Spotlight – Elizabeth Petersen
What is something unique and special about your child with trisomy that you wish more people knew? Eleanor Jane loves everything. She loves to go places and play. She loves petting her puppy. She makes friends everywhere we go. She is happy all the time. Why do you...
Trisomy Awareness Month Spotlight – Debi Muntz
What is something unique and special about your child with trisomy that you wish more people knew? She was beautiful and had a sense of humor. Why do you believe raising awareness about trisomy conditions is important, and how can others make a difference? Raising...
When Love and Strength Lead the Way: A Trisomy 18 Story in The New York Times
Our hearts are full seeing Jacqueline and Noah's story in The New York Times! This beautiful family represents what we know to be true - every child's story matters, every family's love is powerful, and every journey deserves to be honored. So grateful they chose to...
Trisomy Awareness Month Spotlight – Renae Bradley
What is something unique and special about your child with trisomy that you wish more people knew? Dawson is an amazing little boy. He was the joy of our family for 18 years. He could tell you he loved you just in his facial expressions and sounds. Although he never...
Trisomy Awareness Month Spotlight – Kelly Hernandez
What is something unique and special about your child with trisomy that you wish more people knew? Akaiya has a wicked sense of humor. She likes to play tricks on people. Akaiya also loves chaos - the more people, noise and movement the better for her. Why do you...
Trisomy Awareness Month Spotlight – Terre Krotzer
What is something unique and special about your child with trisomy that you wish more people knew? We believe that Krissy chose this life and it is our job to help her live her best life. She is here to teach those around her about love and strength and belief. In...
Trisomy Awareness Month Spotlight – Matilda Mongson
What is something unique and special about your child with trisomy that you wish more people knew? With all the disabilities, , she smiles sometimes, and she eat through her mouth Why do you believe raising awareness about trisomy conditions is important, and how can...
American Academy of Pediatrics Issues Historic Guidance on Trisomy 13 and Trisomy 18 Care
FOR IMMEDIATE RELEASE: Landmark report states "no ethical justifications for universal, principle-based differential treatment" based solely on genetic diagnoses ROCHESTER, NY – July 23, 2025 – Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)...
Trisomy Awareness Month Spotlight – Lynne Stockman
What is something unique and special about your child with trisomy that you wish more people knew? Lyndsay eats food by mouth even though she has a G-tube which we mainly use for liquids and meds. She loves Mylar balloons and kisses. Why do you believe raising...