Trisomy 18, Trisomy 13, SOFT Conference, Balloon Arch

SOFT has held annual family and medical conferences in various cities since 1987.  The annual conference is organized by a host chapter and conference topics have included an overview of Trisomy 18 and Trisomy 13, medical issues affecting children with trisomy, medical clinics, support services available, information on making medical decisions for children with trisomy, and much more.  Typically, about 85 families attend and about 40 SOFT children with Trisomy conditions.  Look under “Events” on the website menu to read the latest conference brochure, for an overview of a typical conference. Attendance numbers for the last several conferences are below the photos on this page.

Past Conferences & the Hospitals Hosting the Medical Clinics:

Trisomy 18, Trisomy 13, SOFT Conference 2019

2019
Ann Arbor, Michigan
University of Michigan’s C.S. Mott Children’s Hospital
Attendance: TBC

2018
Omaha, Nebraska
University of Nebraska
Attendance: TBC

2017
Madison, Wisconsin
University of Wisconsin
Attendance: 285 (202 Adults, 42 Children, 41 SOFT Children)

2016
Tacoma, Washington
Mary Bridge Children’s Hospital
Attendance: 284 (199 Adults, 47 Children, 38 SOFT Children)

2015
Salt Lake City, Utah
Primary Children’s Hospital
Attendance: 269 (198 Adults, 30 Children, 41 SOFT Children)

2014
Norfolk, Virginia
Children’s Hospital of the King’s Daughters
Attendance: 320 (217 Adults, 59 Children, 43 SOFT Children)

2013
Providence, Rhode Island
Hasbro Children’s Hospital
Attendance: 245 (171 Adults, 44 Children, 30 SOFT Children)

2012
St Louis, Missouri | Cardinal Glennon Children’s Hospital
Attendance: N/A

2011
Chicago, Illinois – Hope Children’s Hospital, Oak Lawn
Attendance: 329 (214 Adults, 60 Children, 55 SOFT Children)

2010
Sioux Falls, South Dakota
Sanford Children’s Hospital

Trisomy 18, Trisomy 13, SOFT Conference 2009

2009
Roanoke, Virginia
Carillion Roanoke Community Hospital

Trisomy 18, Trisomy 13, SOFT Conference 2008

2008
Denver, Colorado
The Children’s Hospital, Aurora, Colorado

2007
Salt Lake City, Utah
Primary Children’s Hospital

2006
Chicago, Illinois
Hope Children’s Hospital

Trisomy 18, Trisomy 13, SOFT Conference 2005

2005
Rochester, New York
Strong / Golisano Children’s Hospital

Trisomy 18, Trisomy 13, SOFT Conference 2004

2004
San Antonio, Texas
Co-conference w/Chromosome 18 Registry

2003
Salt Lake City, Utah
Primary Children’s Medical Center

2002
Chicago, Illinois
Hope Children’s Hospital

2001
Boston, Massachusetts
Feingold Center for Children, Waltham, Massachusetts

2000
Orlando, Florida
Arnold Palmer Women & Children’s Hospital

Trisomy 18, Trisomy 13, SOFT Conference 1999

1999
Rochester, New York
University of Rochester/Strong Memorial Hospital

Trisomy 18, Trisomy 13, SOFT Conference 1998

1998
Pittsburgh, Pennsylvania
Allegheny General Hospital

Trisomy 18, Trisomy 13, SOFT Conference 1997

1997
Salt Lake City, Utah
Primary Children’s Medical Center

Trisomy 18, Trisomy 13, SOFT Conference 1996

1996
Durham, North Carolina
Lenox Baker Children’s Hospital

Trisomy 18, Trisomy 13, SOFT Conference

1995
Seattle, Washington
University of Washington Children’s Hospital

1994
Toronto, Canada
Hospital for Sick Children

Trisomy 18, Trisomy 13, SOFT Conference 1993

1993
Chicago, Illinois
Loyola University Medical Center, Maywood, Illinois

Trisomy 18, Trisomy 13, SOFT Conference

1992
Baltimore, Maryland
Kennedy Krieger Institute, Baltimore

Trisomy 18, Trisomy 13, SOFT Conference 91

1991
Seattle, Washington
University of Washington Children’s Hospital

1990
St Louis, Missouri
St. John’s Mercy Children’s Hospital, St Louis, Missouri

1989
San Francisco, California

University of California, San Francisco Medical Center, California

1988
Philadelphia, Pennsylvania

Albert Einstein Medical Center, Philadelphia, Pennsylvania

1987
Salt Lake City, Utah