RESOURCES

 

Parenting Resources

Care of the Infant and Child with Trisomy 18 or Trisomy 13 was written for parents who are expecting, living with or remembering a child affected with these disorders. The greater portion of text covers problems and management of care of the live born infant and living child. It has been continually updated as new information has become available and is the only known resource of its kind. The updated book is available here in English (click the cover), Spanish and Portuguese (click the links below). Please feel free to reproduce as many copies as desired (but don’t change any of the text).

Trisomy 18, Trisomy 13  and Related Disorder Syndromes

Trisomy 18, Trisomy 13 and Related Disorder Syndromes

Workshop Presentation from the 2011 SOFT Conference in Chicago Presenters: Dr. John Carey and Dr. Jeannette Israel This genetic syndrome overview workshop was presented by Dr. Carey and Dr. Israel,...

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One Family’s Birth Plan

One Family’s Birth Plan

This birthing plan, for a child with trisomy 18, was prepared by Patricia Lawson, a trisomy parent. Parents:  Elliott & Patti LawsonChild:  Regan Adeline After our daughter Regan...

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