RESOURCES
Trisomy 18
Look through various resources and information about Trisomy 18
The Nature of Hope
The Nature of Hope: A Live Interview with the Family of Little Erin Workshop Presentation From the 2010 SOFT Conference in Sioux Falls Presenter: Dr. Lawrence Fenton, M.D Dr. Fenton emphasized that...
Developmental Pediatrics and the Medical Home
From the 2011 Chicago SOFT Conference This workshop, presented by Larry W. Desch, MD, FAAP Advocate: Hope Children’s Hospital focuses on the need for special needs children to have a Medical Home....
Trisomy 18, Trisomy 13 and Related Disorder Syndromes
Workshop Presentation from the 2011 SOFT Conference in Chicago Presenters: Dr. John Carey and Dr. Jeannette Israel This genetic syndrome overview workshop was presented by Dr. Carey and Dr. Israel,...
One Family’s Birth Plan
This birthing plan, for a child with trisomy 18, was prepared by Patricia Lawson, a trisomy parent. Parents: Elliott & Patti LawsonChild: Regan Adeline After our daughter Regan...
Changes in Prevalence and Outcomes in Children with Trisomy 18 & 13
PROFESSIONAL VIEWPOINT: Journal Club IRVING C., RICHMOND S, WREN C, LONGSTER C, AND EMBLETON ND. 2011. CHANGES IN PREVALENCE AND OUTCOME FOR TRISOMIES 13 AND 18: A...
Cardiac Surgery in Patients with Trisomy 18
PROFESSIONAL VIEWPOINT: Journal Club KANEKO Y, KOBAYASHI J, IKUYA I, ET AL. 2009. CARDIAC SURGERY IN PATIENTS WITH TRISOMY 18. PEDIATR CARDIOL 30:729-734. This work, accomplished by...
SOFT Welcomes Medical Professionals
Dear Health Professional, Welcome to the SOFT (Support Organization for Trisomy 18, 13, and Related Disorders) page for health professionals. SOFT is a network of families and professionals...
Trisomy in Review
Trisomy 18, 13, & Related Disorders A Research Newsletter For Health Professionals Issue Number 1, Spring, 1993 (note: the guidance table below was updated in 2005) The following pages are from...