by SOFT | Mar 12, 2021 | Blog, Family story, Stories
Cece knows love, she cares when someone is sad, and she will burst out laughing for no reason. She is just a blessing to our family. Cecilia was born at 36 weeks. She was my fourth pregnancy and fourth C-Section. At my twenty week scan I was told Cecilia would need...by Terre Krotzer | Jul 20, 2020 | Blog, Expecting A Child, News, Parenting A Child, Related Disorders, Resources, Trisomy 13, Trisomy 18, Trisomy 9
Dr. John Carey – Trisomy 13/18 The BasicsDr Carey explains the basics of how a trisomy occurs and the differences between full, partial and mosaic. From the SOFT 2020 Virtual Conference. Dr. John C. Carey Throughout his career, Dr. Carey has been interested in...by Jack and Dianna Aubele | May 20, 2013 | Trisomy 9
What is Trisomy 9? When I started on my trisomy journey, my reference point was children with trisomy 18. In the 1990’s, I found very little information about medical conditions, developmental needs and pretty much anything about growth and potential. Fast forward to...
MD, MPH
Retired, General Pediatrics
Ph.D
Professor
Southern Illinois University
MD
Assistant Professor
Yale University School of Medicine
Pediatric Cardiology
MD
Professor of Pediatric Otolaryngology
Mott Children’s Hospital
University of Michigan
Professor of Pediatrics
Director of Medical Genetics
Saint Louis University
SSM Health Cardinal Glennon Children’s Hospital
MD Anesthesiologist
Vice President – Member Support
Medical Advisory Board
Renae actively engages through the Social Media Committee, oversees State Proclamations during Trisomy Awareness Month (TAM), and is chair for SOFT’s state representatives. She holds the position of SOFT treasurer, bringing with her many years of administrative expertise.
Josh possesses significant experience in the field of non-profit leadership, organization, and development. Josh contributes his talents to the SC Baptist Convention. Notably, he played a key role in the revamping of SOFT’s mission statement and vision framework, furthering the organization’s overarching goals and objectives.
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