Trisomy 18 Long-Term Survivors Survey

Trisomy 18 Long-Term Survivors Survey

SOFT Family, the Trisomy 18 Registry is requesting our help in a survey studying long-term survivors with Trisomy 18. If your child is or lived to at least to 1 year old your help is needed. Please share with other families of children who have lived at least 1 year...
Lillian K – Trisomy 18

Lillian K – Trisomy 18

We make the most of our situation. We laugh through hospital admissions. We sing through the storm. And we love more fiercely than we ever have. All because of one extra chromosome. ‘Trisomy 18.’ ‘Incompatible with life.’ ‘Why would anyone want a baby like that?’ I...
Verity Jacobson – Trisomy 18

Verity Jacobson – Trisomy 18

“Verity’s life is anything but futile! She brings love and joy to our household every single day. Her smile and laugh light up our world.” I had never heard of Edwards Syndrome before I got the phone call, but it was the day that changed our lives....