2021 SOFT Virtual Conference is July 19 – 25!

The 2021 SOFT Virtual Conference planning is in the final stages and we are very excited to share this event with you. The team has been working hard to make sure our virtual event feels as much like home as our in-person events do. Because of the virtual format, we have stretched conference out a…

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Trisomy Awareness Month Proclamations

Trisomy Awareness Month Proclamations

March 1st begins 2021 Trisomy Awareness Month As of today, SOFT has received 2021 Trisomy Awareness Month Proclamations from 24 states. Although March has been declared and recognized as Trisomy Awareness Month for over 10 years it has taken some time to get the month officially recognized by individual state. Eight states would have declared…

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SOFT Trisomy Awareness Month Video Blast

2021 SOFT Trisomy Awareness Month Video Blast

  Join us for the Trisomy Awareness Month video blast! The Trisomy Awareness Month video blast is coming and we hope you will join us. We are going to blast social media with short 60 second videos to inform and educate people about our SOFT kids and their various Trisomy conditions. We invite all of…

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SOFT Trisomy Awareness Month Products

Trisomy Awareness Month Products and Tools

March is Trisomy Awareness Month! Trisomy Awareness Month is the time when we share awareness and education of Trisomy conditions, celebrate our children who are beating the odds and remember our sweet Angels who left us far too soon. Trisomy Awareness Month is not just about sharing what a Trisomy is and how it can…

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Video – Shining moments from the TRIS project

The first of a series of videos from the SOFT 2020 Virtual Conference. Deborah A. Bruns, Ph.D.  shares shining moments from the TRIS project: An overview and review of activities with Deborah A. Bruns, Ph.D. About Deborah A. Bruns Ph.D:Deborah A. Bruns is Professor and Off-campus program coordinator for the Special Education program in the…

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2020 SOFT Virtual Conference is coming in July

The 2020 SOFT Virtual Conference planning is underway and we are really excited to share our event with you. The team has been working hard to make sure our virtual event feels as much like home as our in-person events do. Because of the virtual format, we have stretched conference out a few days. It…

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Video – Constipation 101

If you get any two or more parents of children with Trisomy together the conversation will inevitably turn to the subject of constipation. Constipation is one of the most common health issues that families of a child with a diagnosis of Trisomy 18, 13 or other related disorder face. Managing your child’s bowels becomes a…

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Attitudes Toward Hypothetical Uses of Gene-Editing Technologies

The following paper is an interesting article published recently in The CRISPR Journal. The main author, Erika Snure Beckman, performed this work for a Master’s degree while a genetic counseling student at Stanford University. She and her colleagues analyzed the views of parents of persons with trisomy 21, trisomy 18, and trisomy 13 syndromes toward the new gene-editing technologies. The…

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Medical Providers May Not Deny Medical Care Based on Disabilities

The New York Times reports: “Federal civil rights office rejects rationing medical care based on disability or age.” The U.S. Department of Health and Human Services’ civil rights office told medical providers on Saturday that they may not deny medical care to people on the basis of their disabilities or age during the coronavirus emergency.…

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