What is something unique and special about your child with trisomy that you wish more people knew?

Hola SOFT families this is Vanessa and she just turned 21! We are so very blessed to have her in our lives as she is quite sassy and we love her sweet smiles! Her smiles are medicine to our souls. She’s a very strong survivor-warrior! Her strength has given us strength to help her with everything she has been through. She has 2 older brothers who help care for her and love her very much – we all do even our family dog. It was a very special 21st birthday celebration for our Vanessa but we always celebrate her every single day. She is loved so very much. She loves pink and Hello Kitty 💕

Why do you believe raising awareness about trisomy conditions is important, and how can others make a difference?

I feel as if some doctors don’t really know about trisomy 18, especially the mosaic form. When I meet a new doctor, I give a brief description when I introduce Vanessa and tell them everything she has been through. Sometimes they have a surprised look on their face. I dislike when they don’t even acknowledge her. And then I say this doctor is not for us. Vanessa is a person. I do like doctors that say “hello Vanessa” as they look at her, and then we proceed with our appointment.

During Trisomy Awareness Month, what message would you like to share with the world about your family’s journey and the trisomy community?

Although the characteristics of various trisomies are the same, the experience may be different for every family. All the surgeries and doctors appointments and therapies and equipment can all be extremely overwhelming. Parents need to strongly advocate for their child and choose the right doctors and specialists that are willing to help your child as well as listen to the parents and their concerns.