What is something unique and special about your child with trisomy that you wish more people knew?

We received her diagnosis when I was 7 months pregnant, they said it was terminal. She entered this world on Nov 22, 1991 and she wrote her own story, she lived 5.5 years. Her gentle personality, her laugh, her smile, her giggles, above all the love she gave us, A gift from God.
She was able to attend school and each of her doctors said she forever changed the way they consult on cases of Trisomy 18.
We are so thankful for having our Sweet Pea, even through the pain of losing her, I would do it all again to have known such love.

Why do you believe raising awareness about trisomy conditions is important, and how can others make a difference?

We belonged to Soft when it was a newsletter you received by mail, it was so good to connect with other family’s albeit by snail mail! You know you are not alone on this journey, you have hope and also support through the most difficult times.
The medical community can learn so much from each child and give a prognosis that is much more realistic.

During Trisomy Awareness Month, what message would you like to share with the world about your family’s journey and the trisomy community?

These children are born only to love and be loved! It is not what happens to us but what happens in us❤️
We hold Megan in our hearts now, and keep her love alive through sharing with you. Social media has provided a way for so much more awareness and understanding of Trisomy 18 and other Trisomies, a valuable resource, Thank you for all you do to provide for families!