SOFT was among the 150 exhibits at the American Clinical Genetics Meeting sponsored by the American College of Medical Genetics and Genomes in Salt Lake City, Utah March 25- 27th, 2015. Over 2,200 professionals attended the meeting, which consisted of over 40 sessions, workshops, and forums. Board members Debbie Dye and Raquel Wagner (with daughter Ashton who is fifteen and has Full Trisomy 18) represented the SOFT organization by handing out Trisomy Awareness cards, SOFT brochures, and business cards with a QR code which directs the user straight to 

They met with several of the attending Genetics Counselors, Geneticists, and other professionals from around the country – many were already familiar with Dr. Carey and/or SOFT which was very exciting! Dr. John Carey had a busy schedule as well. He had the opportunity to host the research meeting for the 4p group, educate trainees about writing and publishing medical articles, and speak during a presentation entitled: Community Conversation, addressing helping with undiagnosed conditions and rare disorders. Overall it was a great experience. Thank you, Barb for allowing us to represent SOFT National at this special event. Go to: for more information about the ACMG.

Here’s a photo of Debbie and Ashton, manning the SOFT booth