New and Expectant Parent Books from SOFT have reached families and medical professionals 1,065 times since we started sharing them, through direct downloads and mailed requests made straight through SOFT. That number does not include copies purchased on Amazon or physical copies we have shipped separately, so it is a look at just one part of how these books are reaching people, not the full picture. That number alone tells a story, but what is behind it tells a better one.

What Are the New and Expectant Parent Books?

Our New and Expectant Parent Books are written specifically for families who have just received a diagnosis of Trisomy 18, Trisomy 13, or Trisomy 9, along with the medical professionals who support them through that moment. Each book is built around the same idea, that a new or expectant parent deserves plain, accurate information delivered at the exact moment they need it most.

Inside, families find what a diagnosis means in practical terms, what questions are worth asking their care team, what comfort and care options exist, and how to find a community that already understands what they are going through. The Trisomy 18 and Trisomy 13 books are both available in English and Spanish, and a Spanish edition of the Trisomy 9 book is in progress.

Each of the three books started its own journey at a different time. Our Trisomy 18 book went live in November 2024, Trisomy 13 followed in February 2025, and our Trisomy 9 book is the newest, live since January 2026. So the totals below are not a scoreboard, they are three separate stories of families finding SOFT, each one still being written.

Every one of those requests is a family or a care provider finding SOFT at a moment that matters, often right in the middle of pregnancy, right after a diagnosis that is too often described to them as incompatible with life. In that moment, a book that meets them with accurate information and the plain truth that their child's life has meaning can change the entire course of how a family experiences their pregnancy. That is exactly what our New and Expectant Parent Books are built to do.

We have not run any paid advertising to generate these requests. This reach came from being present at a handful of conferences, and from something even better, the referrals of our own families and the doctors who chose to spread the word. A genetic counselor hands a family a link. A neonatologist keeps a copy in a folder for the next diagnosis. A parent who has already been through it sends the book to a friend who just found out. That is what real reach for a community like ours looks like, earned one conversation at a time, not bought.

Trisomy 9 has had less written material available anywhere until recently, the same challenge Trisomy 13 and Trisomy 18 once faced too. As it keeps reaching more families and providers, we expect its numbers to grow the way the other two already have. Every one of these conditions, Trisomy 18, Trisomy 13, and Trisomy 9, deserves a family sitting in a hospital room at two in the morning to be able to find real answers, not just statistics.

None of this happens without the people who choose to share these books. A doctor who hands one to a family the same day as a diagnosis. A parent who posts about it in a support group at midnight because they remember what that first week felt like. Those small moments, repeated over a thousand times, are what these numbers actually represent.