What is something unique and special about your child with trisomy that you wish more people knew?

She loves music! Tangled is her favorite right now. She is amazing, she loves to fight with her brother and argue with her dad. although she’s non verbal, Ella has just learned to use her voice and sing. She can hit those high note!

Why do you believe raising awareness about trisomy conditions is important, and how can others make a difference?

We had to wait an entire year before we located a pediatrician that would help her. We had to advocate for her every step of the way. The last 2 years advocating has been less and now they just know she’s living and deserves the same medical treatment and children who weren’t born with extra awesomeness. One more chromosome shouldn’t determine the care anyone gets.

During Trisomy Awareness Month, what message would you like to share with the world about your family’s journey and the trisomy community?

Please, please, please, let your children know to say hello instead of staring. I know she’s beautiful but just a quick hello makes all the difference. I always say to them “say hello Ella” and Ella just yells hi.