What is something unique and special about your child with trisomy that you wish more people knew?

Maegan’s initial diagnosis was CPAM, she was two months old when we got her t18 diagnosis, she had no external markers to indicate trisomy 18

Why do you believe raising awareness about trisomy conditions is important, and how can others make a difference?

Raising awareness to change the definition of t18 “being incompatible with life” is no longer a true definition! Maegan lived and with greater interventions I believe she could have lived longer! She also gave life or better quality of life to others by being a heart valve and tissue donor! So with all of her conditions and holes in her heart she lived and gave life to others but yet she is considered “incompatible with life”?! Without Maegan her 100’s of recipients would not have had the quality of life they have now!