BLOGS
2024 Trisomy Awareness Profile Frames & Covers
Help Spread Trisomy Awareness with a Trisomy Awareness Profile Frame and Cover Image. To help our community speak with ONE VOICE to raise Trisomy Awareness SOFT has created Trisomy Awareness Profile Frames and Cover Images for you to use on your Facebook page and...
2024 Trisomy Awareness Month Event Calendar
Click below to register for our upcoming events. Registration link for Family Game Night: Registration link for Angel Remembrance Event For the latest information about 2024 Trisomy Awareness Month, please visit us on FaceBook.
Trisomy Awareness Month Proclamations 2024
2024 Trisomy Awareness Month Begins March 1st! As of March 1, 2024, SOFT has received 2024 Trisomy Awareness Month Proclamations from states. Although March has been declared and recognized as Trisomy Awareness Month for over 10 years it has taken some time to get the...
Trisomy 18 Medical Panel – Trisomy Awareness Month 2024
Trisomy 13 Medical Panel – Trisomy Awareness Month 2024
2024 Kari Deann Holladay “SOFT Friends Video” Submission
The ANNUAL “SOFT Friends Video” EVERYONE IS INVITED to submit pictures for the annual Kari Deann Holladay “SOFT Friends Video” a special video presentation honoring all our children through pictures and music. The video will be presented at the 2024 SOFT Conference in...
Trisomy Awareness Month Proclamations 2023
2023 Trisomy Awareness Month Begins March 1st! As of March 1, 2023, SOFT has received 2023 Trisomy Awareness Month Proclamations from XX states. Although March has been declared and recognized as Trisomy Awareness Month for over 10 years it has taken some time to get...
A Statement from the SOFT Board of Directors
FOR IMMEDIATE RELEASE Statement from the Board of Directors of SOFT (Support Organization for Trisomy 18, 13 & Related Disorders) [Rochester, NY, December 14, 2023] – The Board of Directors of SOFT, a leading organization dedicated to supporting individuals and...
Alejandro S – Trisomy 18
My baby is 8 month old. He's a really happy boy. When he born they told us he wasn't going to make it. They didn't want to do his heart surgery so we started to look for a different hospital. We got the best doctor, Dr. Charles Huddles at Cardinal Glennon in St....
Madilyn F – Trisomy 18
"We spent many wonderful hours just enjoying our sweet little girl. There are many things I wish could have been different but I will always treasure the time I had with Madilyn." At our 20 week ultrasound we learned we were having a girl! We were so excited. My...