BLOGS
Trisomy Awareness Month Spotlight – Kathy and Joe Shnowski
What is something unique and special about your child with trisomy that you wish more people knew? We received her diagnosis when I was 7 months pregnant, they said it was terminal. She entered this world on Nov 22, 1991 and she wrote her own story, she lived 5.5...
Trisomy Awareness Month Spotlight – Adela Malave
What is something unique and special about your child with trisomy that you wish more people knew? Hola SOFT families this is Vanessa and she just turned 21! We are so very blessed to have her in our lives as she is quite sassy and we love her sweet smiles! Her smiles...
SOFT Newsletter – September 2025
Dear SOFT Families and Friends, The SOFT Newsletter is back! For many years, the printed newsletter was a treasured way our community connected, celebrated, and lifted each other up. Now, we’re bringing that tradition into your inbox—fresh, renewed, and filled with...
Trisomy Awareness Month Spotlight – Orchid Welgemoed
What is something unique and special about your child with trisomy that you wish more people knew? She had big brown eyes and lots of beautiful black hair. Splitting image of her daddy. Why do you believe raising awareness about trisomy conditions is important, and...
Trisomy Awareness Month Spotlight – Christiane Cuadros
What is something unique and special about your child with trisomy that you wish more people knew? Christopher is such a loving little man. He adores his family. He speaks with his eyes and facial expressions. He's a lot smarter then anyone gives him credit for. He's...
Trisomy Awareness Month Spotlight – Christina Cardoza
What is something unique and special about your child with trisomy that you wish more people knew? Teddy was so happy and had a great quality of life. We were told he would probably never even know who we were but he clearly knew his parents, his sister and his...
Trisomy Awareness Month Spotlight – Genna Hawley
What is something unique and special about your child with trisomy that you wish more people knew? He didn’t have eyes but nobody would of known by the looks of him. Why do you believe raising awareness about trisomy conditions is important, and how can others make a...
Trisomy Awareness Month Spotlight – Abibatu Kamara
What is something unique and special about your child with trisomy that you wish more people knew? My Aminata was full of love Why do you believe raising awareness about trisomy conditions is important, and how can others make a difference? Please do not listen to o...
SOFT Conference 2025 Highlights | Indianapolis
SOFT Conference 2025 – Highlights from Indianapolis, Indiana We are excited to share the highlight video from the SOFT Conference 2025 in Indianapolis, Indiana! This year marked the 39th SOFT Conference, an incredible gathering of families, children, and medical...
Trisomy Awareness Month Spotlight – Jennifer Trejo
What is something unique and special about your child with trisomy that you wish more people knew? Ava got to work with UCF PT students so they could learn how to help support a baby/toddler with low muscle tone as they built her switch adapted car! Why do you believe...







































