BLOGS
Video – Trisomy 13 and 18: The Basics
Dr. John Carey - Trisomy 13/18 The BasicsDr Carey explains the basics of how a trisomy occurs and the differences between full, partial and mosaic. From the SOFT 2020 Virtual Conference. https://www.youtube.com/watch?v=NcKdIq_g-FI Dr. John C. Carey Throughout his...
Video – Heartland Cares: Quality of Life and Family Impact in Caring for Children with Trisomy 13 and 18
Dr. Nicole Birge & Dr. Meaghann WeaverHeartland Cares: Quality of Life and Family Impact in Caring for Children with Trisomy 13 and 18. From the SOFT 2020 Virtual Conference. https://youtu.be/9tQIXg84jzY About Dr. Nicole Birge:Nicole Birge M.D. is the Medical...
Adapted Seating and Mobility
From the SOFT 2020 Virtual ConferenceMichael J. Workman PT C/NDT discusses Adapted Seating and Mobility. https://www.youtube.com/watch?v=_M6JpZ_U7QU About Michael J. Workman:Michael J. Workman PT C/NDT has been a physical therapist for the past 27 years with a primary...
Video – Advances in the Care of Newborns & Infants with Trisomy 18 and 13
From the 2020 SOFT Virtual ConferenceSession 2 of the Professionals PanelDr. Glenn Green & Dr. Shaji Menon discuss Advances in the Care of Newborns & Infants with Trisomy 18 and 13 Recorded on July 15, 2020. https://www.youtube.com/watch?v=ygny9sU2j-A About...
Video – 2020 SOFT Virtual Conference – Welcome to Conference
From the SOFT 2020 Virtual Conference: Welcome to Conference message from SOFT founders Kris Holladay and Dr. John C. Carey and from SOFT President Barb Vanherreweghe. https://youtu.be/TbmUNYKFnsc
Video – Perspectives on the Care of Children with Trisomy 18 and 13
From the SOFT 2020 Virtual ConferenceSession 1 of the Professionals Panel Dr. John Carey discusses Perspectives on the Care of Children with Trisomy 18 and 13. https://youtu.be/guSnYEeLW3Q
Video – Shining moments from the TRIS project
The first of a series of videos from the SOFT 2020 Virtual Conference. Deborah A. Bruns, Ph.D. shares shining moments from the TRIS project: An overview and review of activities with Deborah A. Bruns, Ph.D. https://youtu.be/FmNMPVj971g Download Slideshow About...
Megan Hayes (full Trisomy 18) Turns 40 years Old!
Megan Hayes, oldest known individual in the US (2nd oldest in the world) with Full Trisomy 18 has recently turned 40 years old. A longtime member of SOFT, Megan lives with her parents Ron and Sara Hayes in Oklahoma City, OK.To commemorate Megan's milestone her story...
2020 SOFT Virtual Conference is coming in July
The 2020 SOFT Virtual Conference planning is underway and we are really excited to share our event with you. The team has been working hard to make sure our virtual event feels as much like home as our in-person events do. Because of the virtual format, we have...
Black Lives Matter
Black Lives Matter SOFT is a family consisting of many beautifully diverse individuals. Loving a person with a trisomy condition is the glue that holds us all together. Today and every day, we stand with the many others that are protesting against the ongoing racial...
