2022 Kari Holladay “SOFT Friends” Video Submission

By Terre Krotzer | March 21, 2022

ANNUAL SOFT Friends Video   EVERYONE IS INVITED to submit pictures for the annual “Kari Holladay SOFT Friends Video” a special presentation honoring all our children through pictures and music. The video will be presented at the 2022 Roanoke VA SOFT Conference in July. DETAILS: PHOTOS: submit only 1-2 pictures per child (can include siblings…

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Supplemental Needs Trusts

By Terre Krotzer | August 9, 2021

From the SOFT 2021 Virtual ConferenceSupplemental Needs TrustsDaniel A. Kautz discusses what parents of children and adults with Trisomy conditions need to know about setting up Special Needs Trusts to protect their children financially. Daniel A. Kautz is a Registered Investment Representative with investment experience since 1999. Building and maintaining client relationships is Dan’s top…

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Lean on Us: An Overview and Review of TRIS Project Activities

By Terre Krotzer | August 7, 2021

From the SOFT 2021 Virtual Conference Lean on Us: An Overview and Review of TRIS Project ActivitiesDeborah A. Bruns PhD The Tracking Rare Incidence Syndromes (TRIS) project seeks to increase the knowledge base on rare incidence trisomy conditions, and to make this information available to families and interested educational, medical and therapeutic professionals.

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Face the Sun Art Session

By Terre Krotzer | August 5, 2021

Fron the 2021 SOFT Virtual Conference Face the Sun art session presented by Holly Garce – Art Therapist, MS, ATR Grab the following supplies and create your own Face the Sun art piece: One 1-ounce package of white Model Magic small paper plate small wooden craft stick plastic knife and fork gold acrylic paint small…

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