May brought gifts from across the SOFT family, each one given in love. Some honored a birthday. Some carried a name we will never forget. Some came quietly, with no attribution at all. Every one of them matters deeply to us and to the families we serve.
Whether a family is navigating a new Trisomy 18 or Trisomy 13 diagnosis, parenting a child with a rare chromosome disorder, or carrying the weight of loss, your gifts ensure no one walks that road alone. Thank you.
In Memory of Isabella Moore
Isabella Moore lived nine years with Trisomy 18. The following donors gave in her honor.
- Anita Cummings
- Gary and Gretchen Conway
- Clint and Suzanne Rezec
- Lisa and Brett Parrott
- Larry Lefferts
- Anonymous via Team Pledge
May 2026 Donations
- Chad and Kimey Passick — In Honor of the Life of Luke David LaFave
- Julie and James Dantic — In Loving Memory of Noah Christopher Bozarth "Your family is in our hearts and prayers."
- Lindi Grace — In Memory of Pax Everest Grace
- Charities Aid Foundation America — Recommended by Citizens Bank Support and Constellation
- Elaine and Mike Sebald — In Memory of Daniel Schramm, Timmy and Lena Schramm
- Sandra Naoom — In Memory of Angelia Bebawy
- Anonymous in Connecticut
- Carolyn Pilkin
- Mary Lawson
- Claudette and Larry Flanigan
- Heidi Kloster "She was a special girl who I had the privilege to know for a number of years."
- Vivek Balasubramaniam and Janet Legare "We will miss the vibrant smile that would light up a room and the hearts of everyone in it."
- Anonymous in Virginia
Monthly Donors
Our monthly donors provide SOFT with sustained support that allows us to serve trisomy families consistently throughout the year. We are grateful for every commitment.
Donations Toward the 2026 SOFT Trisomy 18 and Trisomy 13 Conference
The SOFT 40th Annual Conference takes place July 15 to 19, 2026 at Embassy Suites in Loveland, Colorado. These gifts help families affected by Trisomy 18 (Edwards syndrome), Trisomy 13 (Patau syndrome), and related rare chromosome disorders attend the largest gathering of the trisomy community in the country.
To every donor recognized here, and to those who give quietly without attribution: your generosity does more than fund programs. It tells families that they are not alone. It honors the children whose names appear in these pages. It strengthens a community built on love, hope, and the belief that every life matters.
Whether your gift was made in memory of a child lost too soon, in honor of a family living with Edwards syndrome or Patau syndrome, or simply because you believe in what SOFT does, we are grateful beyond words.
If you or someone you know is navigating a Trisomy 18 or Trisomy 13 diagnosis, please explore the resources and support pathways available at trisomy.org. No family should face a rare chromosome disorder diagnosis without community.
Nick
On behalf of the SOFT Board, Staff, and Families
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