RESOURCES

 

Parenting Resources

Care of the Infant and Child with Trisomy 18 or Trisomy 13 was written for parents who are expecting, living with or remembering a child affected with these disorders. The greater portion of text covers problems and management of care of the live born infant and living child. It has been continually updated as new information has become available and is the only known resource of its kind. The updated book is available here in English (click the cover), Spanish and Portuguese (click the links below). Please feel free to reproduce as many copies as desired (but don’t change any of the text).

Interdisciplinary Care of Children with Trisomy 13 and 18

Interdisciplinary Care of Children with Trisomy 13 and 18

From the SOFT 2021 Virtual Conference Professionals Panel. Interdisciplinary Care of Children with Trisomy 13 and 18with Dr. Nicole Birge, MD, Medical Director of the Neonatal Intensive Care Unit at...

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Newborns with trisomy 13 or 18 can benefit from heart surgery

Newborns with trisomy 13 or 18 can benefit from heart surgery

Republished with permission. Infants with the genetic disorders trisomy 13 or 18 are more likely to survive if they undergo heart surgery, a study from researchers at Stanford and the University of...

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Video – Update 2020 on Seizures, Light Sensitivity and Headaches

Video – Update 2020 on Seizures, Light Sensitivity and Headaches

Dr. Steven Cantrell - Seizures, Light Sensitivity and Headaches From the SOFT 2020 Virtual Conference Dr. Cantrell’s workshop, Seizures, Light Sensitivity and Headaches will review the many triggers...

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