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Trisomy 18 – A Handbook for Families
When your Physician first tells you that your baby may have Trisomy 18 (Edward syndrome) or that this diagnosis is suspected, you will be overwhelmed with questions. The first question usually is,...
Important Update Regarding 2020 SOFT Conference
To Our SOFT Family: SOFT is an organization that has always and will always put families first. In light of the arrival of COVID-19 in the United States, the Board of Directors convened to discuss...
A Message from the SOFT Medical and Scientific Advisory Board Regarding Covid-19
To Our SOFT Family: You likely know by now that the 2020 SOFT Conference will be postponed until July 2021 due to concerns for our health related to the coronavirus. While updates on COVID-19...
March is Trisomy Awareness Month
It's March and in SOFT's world that means Trisomy Awareness Month! Every March our SOFT community celebrates Trisomy Awareness Month. This is a time when we share awareness and education of Trisomy...
Video – Cardiac Surgery in Infants with Trisomy 18 and Trisomy 13
A new day is dawning for our kids with heart issues. For years many of our families have had life saving surgeries denied simply because of their child's diagnosis. Dr. James Hammel at Children's...
SOFT Conference History
SOFT has held annual family and medical conferences in various cities since 1987. The annual conference is organized by a host chapter and conference topics have included an overview of Trisomy 18...
Workshop: Transition Points in the Trisomy Journey
Transition Points in the Trisomy Journey was a morning workshop led by Joyce Coleman, a Licensed Clinical Social Worker with over 20 years of experience in health care.