As 2025 came to a close, SOFT was deeply honored by the generosity shown in December by individuals, families, and organizations committed to supporting those affected by Trisomy 13, Trisomy 18, and related conditions.

Each contribution—whether given monthly, in memory, in honor, toward our New Parent Care Package Program, or in support of our annual conference—helps ensure families are met with compassionate, evidence-informed resources and meaningful parent-to-parent connection.

We are grateful to recognize the following donors whose support made an impact in December 2025.

Monthly Donations to SOFT

Ongoing support that sustains our mission throughout the year.

  • Joy and Donald Anderson, in memory of Colin Patrick
  • Sarah Cooper
  • Brianne DeMasi
  • Christina Pineda

Gifts Made in Memory or Honor

Honoring lives, families, and meaningful connections.

  • Georgeann Van Putten, in memory of Kinley Iris-Marie Barton and Stephen Barton
  • Kristian Lichtenfels, in honor of the Maxwell Family
  • Styliani Anysiadou, Esslingen am Neckar, Germany
  • Austin Smith, in memory of Zia Moore
  • Patrice Fumbanks, in memory of Zia Moore and the Moore Family
  • Altec, Inc., through Grants for Volunteers, in honor of Andy VanHerreweghe and his community involvement and volunteer service
  • Sandy and Arden DeZess, in honor of our sweet granddaughter, Tabitha LaHousse
  • Susan Licari, in honor of Patrick Brady
  • Nicole Walker, “This donation is in honor of my amazing daughter, Aliyah Earl, age 2, who was diagnosed with Trisomy 18 at 20 weeks gestation. She is here and thriving, and I wanted to donate to this foundation for being a great resource for our family.”
  • Frank and Ann Barnes, in memory of our beloved Megan Elizabeth Barnes
  • Joanne Meyer
  • John Martin, in memory of our Angel, Mercy Martin
  • Christian Hettick, in honor of Cora Hettick, our amazing 7.5-year-old full Trisomy 13 daughter
  • Rochawnda Carter, in memory of Morgan Gabrielle Carter 

Anonymous gifts were also made in memory of Baby B and in support of families served by SOFT.

New Parent Care Package Program

Providing comfort and connection at the beginning of a family’s journey.

  • Emily Snyder, in loving memory of our Luke, our Little Light Bringer
  • Melissa Thornton, in memory of our sweet baby boy, Colt Lynn, who passed away on June 19, 2025 with a Trisomy 13 diagnosis
  • Tara Spender, in memory of Victory Malachi Spencer
  • Alan Sorensen, in memory of Colt Thornton, who passed at birth on June 18, 2025. We love you, Colt, and your dear family.

Additional Gifts

  • Stephen Siegle — $200.00

SOFT Conference 2026 Donations

Supporting education, connection, and community.

  • Chad Gibler — $55.00 (December 3, 2025)
  • Miles Ilog — $50.00 (December 2, 2025)