A Journey of Love and Strength: Brittany Diaz and Everlii Raine Joy

Introduction

Parenthood is a journey of hope, dreams, and unexpected turns. For Brittany Diaz, this journey took a path she never anticipated when she learned of her daughter’s diagnosis. This is the story of Brittany and her daughter, Everlii Raine Joy Diaz, as told through Brittany’s own words—a story of heartbreak, resilience, and love that defies all odds.

A Life-Changing Diagnosis

“My initial thought was this can’t be true… I was in complete denial. My heart felt heavy, and I could not believe what I was hearing.”

When Brittany received the news that Everlii had Full Trisomy 13 (FT13), her world seemed to crumble. The uncertainty and fear of what this diagnosis meant weighed heavily on her heart. She struggled with disbelief and the overwhelming emotions that came with learning about her child’s condition.

“I just had a miscarriage and then found out about my Everlii so we were beyond excited and my heart completely shattered…. But then I knew I needed to get up and educate myself so I can advocate properly for my sweet girl… my fear was she wouldn’t make it because of everything they said… but I knew otherwise because God told me she was going to be ok…”

The Day Everlii Was Born

“My feelings and experience were beautiful… my Everlii came into this world full of love, surrounded by warmth and family.”

Despite the fear and the unknown, the day Everlii was born turned out to be a moment of pure love and joy. Against the expectations and worries, Brittany held her daughter close, cherishing every second. It was a day filled with gratitude, love, and the realization that every moment was precious.

“My Everlii defied odds… they told she would not make it to full-term, SHE DID! They told me she would not be breathing, SHE DID! They told me her heart was failing, IT WASNT!!! My sweet girl was a fighter… my nerves were real but I believe in the power of prayer… every second with her was beautiful and knowing that hearts were changed and impacted made my heart so full…”

The Evolution of a Mother’s Perspective

“The most challenging is knowing you did everything you can and still feel guilt when they pass… missing them tremendously when they are gone… the most rewarding is just spending all my moments with her… knowing her whole life-she only knew LOVE!!! She was surrounded by it not only from family but by her nurses”

Over time, Brittany’s perspective on the trisomy journey changed. The challenges were undeniable, but they were met with immense love. Each day with Everlii became a treasure, and the struggles were balanced by the deep connection and appreciation for every milestone.

Finding Strength in Support

“This group has helped me so much, and also my faith, my family, and the incredible love I have for my daughter.”

Support played a crucial role in Brittany’s journey. The community of parents who understood her struggles, her faith, and the unwavering support of her family provided the strength she needed. She found solace in knowing that she was not alone, and that others walked a similar path.

Words of Encouragement for Other Parents

“I think I would say pray! And know that it is going to be okay, even when it feels like it’s not.”

To other parents facing a trisomy diagnosis, Brittany offers words of hope and encouragement. She wishes she had known from the start that, while the journey is unpredictable and difficult, there is beauty and love in every single moment. Her experience has taught her that faith and love can carry one through the darkest of times.

Conclusion

Through every challenge and every moment of joy, Brittany and Everlii’s story is one of resilience and unconditional love. It is a testament to the power of faith, the strength of a mother, and the incredible journey of a child who has touched so many hearts. Their story continues to inspire, reminding us all to cherish each moment and embrace love in its purest form.