by Terre Krotzer | Aug 10, 2021 | Blog, Parenting A Child, Resources, Trisomy 13, Trisomy 18, Trisomy 9
From the SOFT 2021 Virtual Conference. Dr. Steven Cantrell, OD – Finding Solutions: Managing Photosensitive Seizures, Light Sensitivity and Ocular Health.by Terre Krotzer | Aug 9, 2021 | Blog, Parenting A Child, Resources
From the SOFT 2021 Virtual ConferenceSupplemental Needs TrustsDaniel A. Kautz discusses what parents of children and adults with Trisomy conditions need to know about setting up Special Needs Trusts to protect their children financially. Daniel A. Kautz is a...by Terre Krotzer | Aug 7, 2021 | Blog, News
From the SOFT 2021 Virtual Conference Lean on Us: An Overview and Review of TRIS Project ActivitiesDeborah A. Bruns PhD The Tracking Rare Incidence Syndromes (TRIS) project seeks to increase the knowledge base on rare incidence trisomy conditions, and to make this...by Terre Krotzer | Aug 5, 2021 | Blog
Fron the 2021 SOFT Virtual Conference Face the Sun art session presented by Holly Garce – Art Therapist, MS, ATR Grab the following supplies and create your own Face the Sun art piece: One 1-ounce package of white Model Magic small paper plate small wooden craft...by Terre Krotzer | Aug 2, 2021 | Blog, Parenting A Child, Related Disorders, Resources, Trisomy 13, Trisomy 18, Trisomy 9
From the SOFT 2021 Virtual Conference. Aquatic Therapy – Briana Demars OTA
MD, MPH
Retired, General Pediatrics
Ph.D
Professor
Southern Illinois University
MD
Assistant Professor
Yale University School of Medicine
Pediatric Cardiology
MD
Professor of Pediatric Otolaryngology
Mott Children’s Hospital
University of Michigan
Professor of Pediatrics
Director of Medical Genetics
Saint Louis University
SSM Health Cardinal Glennon Children’s Hospital
MD Anesthesiologist
Vice President – Member Support
Medical Advisory Board
Renae actively engages through the Social Media Committee, oversees State Proclamations during Trisomy Awareness Month (TAM), and is chair for SOFT’s state representatives. She holds the position of SOFT treasurer, bringing with her many years of administrative expertise.
Josh possesses significant experience in the field of non-profit leadership, organization, and development. Josh contributes his talents to the SC Baptist Convention. Notably, he played a key role in the revamping of SOFT’s mission statement and vision framework, furthering the organization’s overarching goals and objectives.
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