Video – 2022 SOFT Medical Advisory Board Round Table

By Terre Krotzer | March 20, 2022

First ever SOFT Medical Advisory Board Round Table Recorded March 18, 2022 Featuring:  Dr. John C. Carey Dr. Glenn Green Dr. James Hammel Dr. Shaji Menon Dr. Scott Showalter This video is the replay of the first SOFT Medical Advisory Board Round Table hosted by Dr. John C. Carey. This Q & A style roundtable…

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Video – Perspectives on the Care and Management of Children with Trisomy 13 and 18 Syndromes

By SOFT | January 22, 2022

Intermountain Children’s Primary Hospital – Pediatric Grand Rounds John C. Carey, MD, MPH, FAAP, FACMG    Emeritus ProfessorUniversity of Utah School of MedicinePediatric Genetics  Primary Children’s Hospital Objectives: List the important manifestations and complications occurring in the 2 trisomy syndromes Identify the key issues surrounding the controversies in care of infants with trisomy 13 and 18

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Video: Routine Health Care for Children with Trisomy 18

By Terre Krotzer | April 6, 2020

What should parents and medical professionals know and expect as reasonable health standards for children with Trisomy 18? Dr. John Carey, MD and medical advisor for SOFT discusses current medical standards and expectations for children living with Trisomy 18 or Edwards Syndrome. From the 2013 TrisomyTalk.com series of medical webinars. Dr. John Carey, MD and…

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