by Terre Krotzer | Jul 19, 2020 | Blog, Expecting A Child, Medical Professionals, News, Parenting A Child, Resources, Surgery, Trisomy 13, Trisomy 18
Dr. Nicole Birge & Dr. Meaghann WeaverHeartland Cares: Quality of Life and Family Impact in Caring for Children with Trisomy 13 and 18. From the SOFT 2020 Virtual Conference. About Dr. Nicole Birge:Nicole Birge M.D. is the Medical Director of the Neonatal...by John Smith | Nov 10, 2012 | Expecting A Child, Parenting A Child, Related Disorders, Resources, Trisomy 13, Trisomy 18, Trisomy 9
A brief description of Pediatric Palliative Care, Perinatal Palliative Care and Pediatric Hospice Care Pediatric Palliative Care Palliative Care is often recommended for newborns with trisomy 18 or 13 who are able to be discharged from the hospital to home....by SOFT | Mar 11, 2012 | Beyond Goodbye, Blog, Expecting A Child, Medical Professionals, Parenting A Child, Trisomy 13, Trisomy 18, Trisomy 9
The Nature of Hope: A Live Interview with the Family of Little Erin Workshop Presentation From the 2010 SOFT Conference in Sioux Falls Presenter: Dr. Lawrence Fenton, M.D Dr. Fenton emphasized that each patient is ill in his or her own way. Physicians and others must...by Jack and Dianna Aubele | Aug 15, 2011 | Expecting A Child, Related Disorders, Resources, Trisomy 13, Trisomy 18, Trisomy 9
This birthing plan, for a child with trisomy 18, was prepared by Patricia Lawson, a trisomy parent. Parents: Elliott & Patti LawsonChild: Regan Adeline After our daughter Regan was diagnosed with Full Trisomy 18 at twenty weeks our lives...
MD, MPH
Retired, General Pediatrics
Ph.D
Professor
Southern Illinois University
MD
Assistant Professor
Yale University School of Medicine
Pediatric Cardiology
MD
Professor of Pediatric Otolaryngology
Mott Children’s Hospital
University of Michigan
Professor of Pediatrics
Director of Medical Genetics
Saint Louis University
SSM Health Cardinal Glennon Children’s Hospital
MD Anesthesiologist
Vice President – Member Support
Medical Advisory Board
Renae actively engages through the Social Media Committee, oversees State Proclamations during Trisomy Awareness Month (TAM), and is chair for SOFT’s state representatives. She holds the position of SOFT treasurer, bringing with her many years of administrative expertise.
Josh possesses significant experience in the field of non-profit leadership, organization, and development. Josh contributes his talents to the SC Baptist Convention. Notably, he played a key role in the revamping of SOFT’s mission statement and vision framework, furthering the organization’s overarching goals and objectives.
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