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Posts Tagged ‘survey’

Trisomy 18 Long-Term Survivors Survey

By SOFT | February 6, 2021

If your child with Trisomy 18 is or was a long-term survivor (1+ years) please help with this study conducted by the Trisomy 18 Registry.

Read More

Recent Posts

  • SOFT Conference 2022 Covid-19 Precautions
  • 2022 Kari Holladay “SOFT Friends” Video Submission
  • Video – 2022 SOFT Medical Advisory Board Round Table
  • Trisomy Awareness Month Proclamations 2022
  • 2022 Trisomy Awareness Profile Frames & Covers

Select a Video Category to see available videos

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2982 South Union St.,
Rochester, NY 14624

Trisomy 18, Trisomy 13 and Related Disorders. © 2022 SOFT. No cookies are created by this site. Privacy Policy | Terms and Conditions of Use

Full ADULT (ages 12+) Conference Registration (Conference, Workshops, Clinics, Picnic): $149

Full Child (age 5-11) Conference Registration: $119

Children under 5 and SOFT children: FREE

Other Pricing

Adult Picnic-only Registration: $39

Child (ages 5-11) Picnic-only Registration: $25

Adult Picnic & Auction Registration: $49

Child Picnic & Auction Registration: $35

Place Order

2021 Trisomy Awareness Products order form

  • SOFT Trisomy Awareness Month Products

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  • Please enter a number from 0 to 10.

  • Please enter a number from 0 to 10.

  • Please enter a number from 0 to 10.

  • Includes 3 wristbands, 1 auto window decal & 5 postcards for a $12 donation
  • Please enter a number from 0 to 10.

  • SOFT Trisomy Strong Adjustable Wristlet

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  • Orders including this item will not ship until after Feb. 24, 2021. If you want your other items to arrive sooner consider placing a separate order for this item.

  • SOFT Trisomy Strong Face Masks

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  • Please enter a number from 0 to 10.
    If choosing assorted please enter preference in comments at bottom of form.
  • Please enter a number from 0 to 10.

    If choosing assorted please enter preference in comments at bottom of form.

  • SOFT Trisomy Awareness Postcards

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  • Please enter a number from 0 to 10.
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  • Please enter a number from 0 to 10.

  • SOFT Awareness Ribbon Auto Window Decals

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  • Please enter a number from 0 to 10.

  • Shipping

  • Shipping to US addresses is included in the above prices. If shipping to an address in Canada there is a shipping charge of $10. For shipping to all other countries there is a shipping charge of $15. Enter quantity of 1 in the box below to have shipping charge added to your order. If shipping charges on your order are significantly higher than the $15 charge we will contact you.

  • Please enter a number from 0 to 1.
  • Please enter a number from 0 to 1.

  • $0.00

  • After tapping the SUBMIT button, you will be taken to PayPal to complete the transaction, paying with either your credit card or your PayPal account. After tapping the SUBMIT button, please allow some time for the transfer to PayPal to occur.

  • Give us some information to help us find and verify your account.
  • where can we reach you with your information?
  • Give us some information to help us find and verify your account.
  • where can we reach you with your information?

Spread the Word

We’ve got some ideas on how you can raise awareness

Visit our TAM page

Share SOFT Stories on Facebook

Speak to Your Friends, Family, and Doctors

Start a Merchandise Fundraiser

 

Interested in Starting a Fundraiser?

Here are some ideas how

Use FaceBook to start a Fundraiser on Your Birthday

Sell Merchandise though a Fundraising Platform

    • Bonfire
    • Teespring

Use Another Fundraising Platform

    • Indiegogo
    • FirstGiving

Participate in an Event like a Walk or Run along with Crowdrise