by Terre Krotzer | Feb 11, 2022 | Blog, News
When we first had our daughter Erin we imagined all of the highlights to come in her life: her first day of school, prom, going off to college, getting married. Once we were given her diagnosis, when she was two weeks old, we realized that those highlights may never...by SOFT | Jan 22, 2022 | Blog, Medical Professionals, Resources, Trisomy 13, Trisomy 18
Intermountain Children’s Primary Hospital – Pediatric Grand Rounds John C. Carey, MD, MPH, FAAP, FACMG Emeritus ProfessorUniversity of Utah School of MedicinePediatric Genetics Primary Children’s Hospital Objectives: List the important manifestations...by Terre Krotzer | Aug 10, 2021 | Blog, Parenting A Child, Resources, Trisomy 13, Trisomy 18, Trisomy 9
From the SOFT 2021 Virtual Conference. Dr. Steven Cantrell, OD – Finding Solutions: Managing Photosensitive Seizures, Light Sensitivity and Ocular Health.by Terre Krotzer | Aug 5, 2021 | Blog, Parenting A Child, Related Disorders, Resources, Trisomy 13, Trisomy 18, Trisomy 9
From the SOFT 2021 Virtual ConferenceFitting, Adjusting and Modifying Mobility Equipment – Strategies for Adults and Children with Trisomies Michael J. Workman PT C/NDTby Terre Krotzer | Aug 2, 2021 | Blog, Parenting A Child, Related Disorders, Resources, Trisomy 13, Trisomy 18, Trisomy 9
From the SOFT 2021 Virtual Conference. Aquatic Therapy – Briana Demars OTA
MD, MPH
Retired, General Pediatrics
Ph.D
Professor
Southern Illinois University
MD
Assistant Professor
Yale University School of Medicine
Pediatric Cardiology
MD
Professor of Pediatric Otolaryngology
Mott Children’s Hospital
University of Michigan
Professor of Pediatrics
Director of Medical Genetics
Saint Louis University
SSM Health Cardinal Glennon Children’s Hospital
MD Anesthesiologist
Vice President – Member Support
Medical Advisory Board
Renae actively engages through the Social Media Committee, oversees State Proclamations during Trisomy Awareness Month (TAM), and is chair for SOFT’s state representatives. She holds the position of SOFT treasurer, bringing with her many years of administrative expertise.
Josh possesses significant experience in the field of non-profit leadership, organization, and development. Josh contributes his talents to the SC Baptist Convention. Notably, he played a key role in the revamping of SOFT’s mission statement and vision framework, furthering the organization’s overarching goals and objectives.
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