Claire L – Trisomy 13

Claire L – Trisomy 13

We have had a really happy, healthy second year with Claire! She’s been to the beach and is learning to crawl. She loves music, especially Raffi, and is very ticklish. At our 20 week anatomy scan, we were shocked. Our baby’s eyeballs were so underdeveloped, the doctor...
Omar Gonzalez – Trisomy 13

Omar Gonzalez – Trisomy 13

Though this has not been an easy journey, it is one I would pick a million times over, just to meet our sweet boy. My husband and I first learned something was “wrong” when I was about 11 weeks pregnant, with Omar, who has full Trisomy 13. The doctor told me Omar had...
Carter R – Trisomy 13

Carter R – Trisomy 13

“I would do it all again just to have the chance to hold my baby one more time.” On April 4, 2020 my life changed forever. I went into my 13 week ultrasound only to be told the baby was showing signs of Trisomy 13. I had no idea what this condition was,...
Video – Heartland Cares: Quality of Life and Family Impact in Caring for Children with Trisomy 13 and 18

Video – Heartland Cares: Quality of Life and Family Impact in Caring for Children with Trisomy 13 and 18

Dr. Nicole Birge & Dr. Meaghann WeaverHeartland Cares: Quality of Life and Family Impact in Caring for Children with Trisomy 13 and 18. From the SOFT 2020 Virtual Conference. About Dr. Nicole Birge:Nicole Birge M.D. is the Medical Director of the Neonatal...