NEWS
2025 Kari Deann Holladay “SOFT Friends Video” Submission
The ANNUAL “SOFT Friends Video” EVERYONE IS INVITED to submit pictures for the annual Kari Deann Holladay “SOFT Friends Video” a special video presentation honoring all our children through pictures...
2025 Trisomy Awareness Month Event Calendar
Click below to register for our upcoming events. March 1st - 7pm CST: Welcome to Trisomy Awareness Month March 8th - 7pm CST: Family Game Night Register Here to attend on Zoom March 9th - 6pm CST:...
2025 Trisomy Awareness Profile Frames & Covers
Help Spread Trisomy Awareness with a Trisomy Awareness Profile Frame and Cover Image. To help our community speak with ONE VOICE to raise Trisomy Awareness SOFT has created Trisomy Awareness Profile...
Trisomy 9 Medical Panel – Trisomy Awareness Month 2025
Trisomy 18 and 13 Medical Panel – Trisomy Awareness Month 2025
2024 SOFT Conference Workshop: Cardiac Surgery In Infants with Trisomy 18 and 13
This workshop was presented at the 2024 SOFT Conference in Minneapolis, MN on July 12, 2024.Please note that the Doctor Q&A is also included on this video.
Perspectives on the Care and Management of Children with Trisomy 13 & 18 Syndromes
Perspectives on the Care and Management of Children with Trisomy 13 & 18 Syndromes. Presentation occured at the Grand Rounds on July 12, 2024 in Saint Paul, Minnesota.
The SOFT Nominating Committee Is Pleased To Announce
Hello SOFT Membership – We are excited for the annual SOFT Conference this summer in Bloomington MN, July 10-14, 2024. The Nominating Committee is pleased to announce the opportunity to consider...
Pediatric study opportunity for Trisomy 18/13
University of California San Diego (UCSD) Pediatrics Study Opportunity WHAT: Investigators at UCSD are interested in learning more about parents views and experiences of the medical care provided to...