by Jack and Dianna Aubele | Dec 17, 2019 | Medical Professionals, Parenting A Child, Related Disorders, Resources, Surgery, Trisomy 13, Trisomy 18
Bonnie Baty, PhD, Genetic Counselor at the University of Utah, in collaboration with SOFT, created the first, and still only, charts with growth curves for infants and children with trisomy 18 and 13. Children’s standardized growth charts are separate for boys and...by Jack and Dianna Aubele | Aug 9, 2017 | Expecting A Child, Medical Professionals, Parenting A Child, Trisomy 13, Trisomy 18, Trisomy 9
Fallible Truths: Presentation made by Dr. McCaffrey View & Download this presentation. Fallible TruthsDownloadby Jack and Dianna Aubele | Mar 27, 2015 | News
SOFT was among the 150 exhibits at the American Clinical Genetics Meeting sponsored by the American College of Medical Genetics and Genomes in Salt Lake City, Utah March 25- 27th, 2015. Over 2,200 professionals attended the meeting, which consisted of over 40...by Jack and Dianna Aubele | May 20, 2013 | Trisomy 13
What is Trisomy 13? It is difficult to find the accurate prevalence data about trisomy 13 (t13). Some studies look to hospital registries while others focus on infants born in a specific state or country. Numbers are extrapolated and figures are shared. The common...by Jack and Dianna Aubele | May 20, 2013 | Trisomy 9
What is Trisomy 9? When I started on my trisomy journey, my reference point was children with trisomy 18. In the 1990’s, I found very little information about medical conditions, developmental needs and pretty much anything about growth and potential. Fast forward to...
MD, MPH
Retired, General Pediatrics
Ph.D
Professor
Southern Illinois University
MD
Assistant Professor
Yale University School of Medicine
Pediatric Cardiology
MD
Professor of Pediatric Otolaryngology
Mott Children’s Hospital
University of Michigan
Professor of Pediatrics
Director of Medical Genetics
Saint Louis University
SSM Health Cardinal Glennon Children’s Hospital
MD Anesthesiologist
Vice President – Member Support
Medical Advisory Board
Renae actively engages through the Social Media Committee, oversees State Proclamations during Trisomy Awareness Month (TAM), and is chair for SOFT’s state representatives. She holds the position of SOFT treasurer, bringing with her many years of administrative expertise.
Josh possesses significant experience in the field of non-profit leadership, organization, and development. Josh contributes his talents to the SC Baptist Convention. Notably, he played a key role in the revamping of SOFT’s mission statement and vision framework, furthering the organization’s overarching goals and objectives.
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