RESOURCES
Trisomy 18
Look through various resources and information about Trisomy 18
Caitlin’s Story: A Mother’s Journey with Trisomy 18, Edwards Syndrome, and the Importance of Support for Trisomy Families
A Mother’s Journey with Trisomy 18, Edwards Syndrome, and the Importance of Support for Trisomy Families Watch and Listen to Caitlin’s Story We invite you to experience Nancy’s story in the format...
How SOFT Began: A Founding Story for Trisomy Awareness Month 2026
How SOFT Began: A Founding Story for Trisomy Awareness Month 2026 March is Trisomy Awareness Month — a time when families, medical professionals, and advocates unite to share knowledge, raise...
Trisomy Awareness Month: Medical Panel Answers Family Questions for Talking Trisomy Podcast
Trisomy Awareness Month: Medical Panel Answers Family Questions As part of Trisomy Awareness Month 2026, Talking Trisomy convened a panel of experienced clinicians to address questions submitted by...
Trisomy 9 Families & Experts Share Stories, Research, and Support | Talking Trisomy
Talking Trisomy: Families, Experts, and the Future of the Trisomy 9 Community For many families, receiving a Trisomy 9 diagnosis can feel isolating and overwhelming. Because Trisomy 9 is rare,...
Trisomy 13 Medical Panel – Trisomy Awareness Month 2026
Trisomy 18 Medical Panel – Trisomy Awareness Month 2026
With Gratitude: Honoring Our January 2026 SOFT Donors
SOFT gratefully recognizes our January 2026 donors whose generosity supports families affected by Trisomy 13 and Trisomy 18 through education, remembrance, and community. As we begin 2026, we are...
Living With Trisomy 18:
Choosing The ‘Life Narrative’ For Izzie
Introduction Families who receive a diagnosis like Trisomy 18 are often introduced to their child’s story through statistics, grim predictions, and assumptions about what life will—or will not—look...




































