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Parenting Resources

Care of the Infant and Child with Trisomy 18 or Trisomy 13 was written for parents who are expecting, living with or remembering a child affected with these disorders. The greater portion of text covers problems and management of care of the live born infant and living child. It has been continually updated as new information has become available and is the only known resource of its kind. The updated book is available here in English (click the cover), Spanish and Portuguese (click the links below). Please feel free to reproduce as many copies as desired (but don’t change any of the text).

Video – 2022 SOFT Medical Advisory Board Round Table

Video – 2022 SOFT Medical Advisory Board Round Table

First ever SOFT Medical Advisory Board Round TableRecorded March 18, 2022 Featuring:  Dr. John C. Carey Dr. Glenn Green Dr. James Hammel Dr. Shaji Menon Dr. Scott Showalter This video is the replay...

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Video – Perspectives on the Care and Management of Children with Trisomy 13 and 18 Syndromes

Video – Perspectives on the Care and Management of Children with Trisomy 13 and 18 Syndromes

Intermountain Children's Primary Hospital - Pediatric Grand Rounds John C. Carey, MD, MPH, FAAP, FACMG   Emeritus ProfessorUniversity of Utah School of MedicinePediatric Genetics  Primary Children’s...

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