Trisomy 18 Long-Term Survivors Survey

Trisomy 18 Long-Term Survivors Survey

SOFT Family, the Trisomy 18 Registry is requesting our help in a survey studying long-term survivors with Trisomy 18. If your child is or lived to at least to 1 year old your help is needed. Please share with other families of children who have lived at least 1 year...
Your Profile Explained

Your Profile Explained

Welcome to your new profile! Let’s go through all the features of your profile and what you can do. Please note this is NOT a social media platform. Your profile is designed to show you the information you’ve submitted to SOFT as well as being an easy way...