BLOGS

Video – Cardiac Surgery in Infants with Trisomy 18 and Trisomy 13

Video – Cardiac Surgery in Infants with Trisomy 18 and Trisomy 13

A new day is dawning for our kids with heart issues. For years many of our families have had life saving surgeries denied simply because of their child's diagnosis. Dr. James Hammel at Children's Hospital in Omaha is looking beyond the label, giving our families hope...

read more
Perspectives on the Medical and Genetic Aspects of the Trisomy 18 & 13 Syndromes

Perspectives on the Medical and Genetic Aspects of the Trisomy 18 & 13 Syndromes

Presented at the 2012 SOFT Conference, St. Louis  Dr. Carey began by saying questions were welcomed. He also noted most participants were familiar with the basics of trisomy, so he would emphasize new information.  The result was he completed about 10% of...

read more

The Care Book (English, Spanish, Portuguese)

Care of the Infant and Child with Trisomy 18 or Trisomy 13 was written for parents who are expecting, living with or remembering a child affected with these disorders. The greater portion of text covers problems and management of care of the live born infant and...

read more

Search All Blog