BLOGS
Triage guidelines for hospital admission during crisis
A message from Dr. John Carey, SOFT Medical Advisor Greetings to Families and Friends of SOFT, At this unreal time, let me say first that I share with all the intense and widespread concerns and anxiety engendered by COVID-19. Despite working every day at home now,...
Preparing for Hannah Faith – A Birth Plan
Birth Plan for Hannah Faith, diagnosed with Trisomy 18 On October 7th 2013, I was 14 weeks pregnant and expecting a call from our genetics counselor to reveal the gender of our third child! Her words, instead changed the course of my life. My child had Trisomy 18. I...
Important Update Regarding 2020 SOFT Conference
To Our SOFT Family: SOFT is an organization that has always and will always put families first. In light of the arrival of COVID-19 in the United States, the Board of Directors convened to discuss appropriate actions that should be taken in order to keep our members,...
A Message from the SOFT Medical and Scientific Advisory Board Regarding Covid-19
To Our SOFT Family: You likely know by now that the 2020 SOFT Conference will be postponed until July 2021 due to concerns for our health related to the coronavirus. While updates on COVID-19 (coronavirus illness) pandemic are publicized on the TV news regularly and...
Cardiac Surgeries and Procedures Reported to SOFT, Arrayed by Diagnosis
As new surgeries are reported, SOFT updates this table with cardiac related surgeries and procedures. This data shows the number of surgeries performed by type of cardiac procedure and by the diagnosis of the child. Grab the slider bar at the end of the report to...
March is Trisomy Awareness Month
It's March and in SOFT's world that means Trisomy Awareness Month! Every March our SOFT community celebrates Trisomy Awareness Month. This is a time when we share awareness and education of Trisomy conditions, celebrate our children who are beating the odds and...
Video – Cardiac Surgery in Infants with Trisomy 18 and Trisomy 13
A new day is dawning for our kids with heart issues. For years many of our families have had life saving surgeries denied simply because of their child's diagnosis. Dr. James Hammel at Children's Hospital in Omaha is looking beyond the label, giving our families hope...
SOFT Conference History
SOFT has held annual family and medical conferences in various cities since 1987. The annual conference is organized by a host chapter and conference topics have included an overview of Trisomy 18 and Trisomy 13, medical issues affecting children with trisomy,...