RESOURCES

Expecting A Child

Are you expecting a child? Read through our resources for helpful information

Aquatic Therapy

by Terre Krotzer | Aug 2, 2021 | Blog, Parenting A Child, Related Disorders, Resources, Trisomy 13, Trisomy 18, Trisomy 9 | 2021 SOFT Virtual Conference, 2021 Virtual Conference SOFT Virtual Conference, aquatic therapy, Edwards Syndrome, Patau Syndrome, Related Disorders, Trisomy 13, Trisomy 18

From the SOFT 2021 Virtual Conference. Aquatic Therapy - Briana Demars OTA

Spectrum of Epilepsy in Trisomy 18 Syndrome

by Terre Krotzer | Aug 2, 2021 | Blog, Medical Professionals, Parenting A Child, Resources, Trisomy 13, Trisomy 18 | Edwards Syndrome, epilepsy, Patau Syndrome, seizures, Trisomy 13, Trisomy 18

From the SOFT 2021 Virtual Conference Professionals Panel. Spectrum of Epilepsy in Trisomy 18 SyndromeDr. Agatino Battaglia, MD, DPed, DNeurol

Newborn Airway Evaluation and Mandibular Distraction in Trisomy 18

by Terre Krotzer | Jul 30, 2021 | Blog, Expecting A Child, Medical Professionals, Parenting A Child, Resources, Surgery, Trisomy 18 | airway issues, Dr. Glen Green, Edwards Syndrome, mandibular distraction, newborn airway evaluation, Patau Syndrome, tracheostomy, trachs, Trisomy 18

From the SOFT 2021 Virtual Conference Professional Panel: Newborn Airway Evaluation and Mandibular Distraction in Trisomy 18Glenn E. Green, MD, Professor, Department of Otolaryngology-Head and Neck...

Perspectives on the Care of Children with Trisomy 18/13 – 2021 Version

by Terre Krotzer | Jul 30, 2021 | Blog, Expecting A Child, Medical Professionals, Parenting A Child, Resources, Trisomy 13, Trisomy 18 | 2021 SOFT Virtual Conference, 2021 Virtual Conference, Dr. John C. Carey, Edwards Syndrome, Genetics, Patau Syndrome, Trisomy 13, Trisomy 18

From the SOFT 2021 Virtual Conference Professional Panel: 2021 Version of Perspectives on the Care of Children with Trisomy 18/13John C. Carey, MD, MPH, FAAP, FACMGG, Professor Emeritus, University...

Trisomy 18/13 – The Basics – 2021 Version

by Terre Krotzer | Jul 29, 2021 | Blog, Expecting A Child, Parenting A Child, Resources, Trisomy 13, Trisomy 18 | 2021 SOFT Virtual Conference, 2021 Virtual Conference, Dr. John C. Carey, Edwards Syndrome, Genetics 101, Patau Syndrome, Trisomy 13, Trisomy 18

From the SOFT 2021 Virtual Conference: 2021 Version of Trisomy 18/13 – The BasicsJohn C. Carey, MD, MPH, FAAP, FACMGG, Professor Emeritus, University of Utah

Congenital Heart Surgery in Trisomy 13 and 18

by Terre Krotzer | Jul 28, 2021 | Blog, Expecting A Child, Medical Professionals, Parenting A Child, Resources, Surgery, Trisomy 13, Trisomy 18 | 2021 SOFT Virtual Conference, 2021 Virtual Conference, cardiac surgery, Congenital heart defects, Dr. Katherine Kosiv, Heart Surgery, Trisomy 13, Trisomy 18

From the SOFT 2021 Virtual Conference Professional Panel Congenital Heart Surgery in Trisomy 13 and 18 - An Update and Future Directionswith Dr. Katherine Kosiv, Assistant Professor of Clinical...

Interdisciplinary Care of Children with Trisomy 13 and 18

by Terre Krotzer | Jul 28, 2021 | Blog, Expecting A Child, Medical Professionals, Parenting A Child, Surgery, Trisomy 13, Trisomy 18 | 2021 Virtual Conference, cardiac surgery, Dr Nicole Birge, Dr. Lois Starr, Heart Surgery, Omaha Children's Hospital, Trisomy 13, Trisomy 18

From the SOFT 2021 Virtual Conference Professionals Panel. Interdisciplinary Care of Children with Trisomy 13 and 18with Dr. Nicole Birge, MD, Medical Director of the Neonatal Intensive Care Unit at...